I had a lousy physical therapy session yesterday. Actually pathetic was more like it. Lousy multiple sclerosis day and I have no idea why. My physical therapist says he wished he had a manic pill to cure MS. I would settle for a pill that gave me the day off or even an hour off. I miss being able to dance. I’m watching this tv show about dancing and I could never move the way they do. However what I…
I broke my glass coffee pot this weekend. This seems to happen every two years if not yearly. I do have to say the last time I wasn’t the one who broke it but I shouldn’t brag because I’m pretty sure every other time it was me. I don’t buy expensive coffee pots for this precise reason but I really hated my last purchase. I always put cinnamon in my coffee grinds and this basket constantly caused the caused the…
My neurologist and I decided we were going to switch to Kesimpta by my next infusion date. https://multipleexperiences.org/2021/04/26/possibly-switching-to-kesimpta/. My doctor wanted to start the process in July although my next infusion date isn’t until September. We entered the prescription into the pharmacy to start the process. It was less than 24 hours later that I received the denial from my insurance. The denial reason was that this medication wasn’t necessary and there may be other medication that can met my…
Better today but still so tired. I went into bed at 8 last night and got out of bed after 8 this morning. Today is the first day I’m drinking coffee. Hopefully that helps. However I can feel already my body is exhausted. I did a very simple 30 minute workout because I have a few things going on today and didn’t want to overdo myself. Yet I’m sitting here exhausted. This is not good. So much has gone on…
Rough day yesterday. I didn’t feel well when I woke up in the morning. I didn’t pay attention. I did my normal routine and was working out when Minx started eating something he shouldn’t. I reached down to pick up my grabber, which I myself knocked over, and literally fell out of the wheelchair. I got myself right back up but was unable to turn around and get myself back into the wheelchair and slid down again. My body was…
I have multiple sclerosis. Sometimes this disease makes it so difficult. I pray for a day that everything wasn’t so hard. Yet one day I’ll look back at days the way I am now wishing I could have these back. That’s the thing, I know in time, it will be worse. That’s a truly sobering thought, knowing for sure my MS will be worse. People ask how I have such a positive attitude, with the real knowledge I live with,…
I’m sure I’ve blogged about this at some point because I don’t do well with disruptions. The days of spontaneous activities have long been gone. I could never just meet someone for dinner at short notice. My life, or I should say my activities, are planned both mentally and physically. Everything I do requires a tremendous amount of effort. Everyday is different as to which activity will put me over the edge. The activity might be the same and the…
It is beautiful out although slightly chilly. That doesn’t stop me from opening windows to let some fresh air through. I don’t mind the chill, it feels nice because the sun is hitting this side of the building. Once the sun starts to move I will start to freeze. The temperature is only 46 degrees out, not really windows open weather. It’s that sun hitting so directly that adds so much heat. It feels really nice. I’ve been feeling pretty…
I’m thankfully doing better today because I slept. Never under estimate the power of a good nights sleep. I was able to exercise a little this morning. I purposely decided to keep it simple and just do my MS gym exercises. There was an entire revamping of the MS gym and I actually started the from the very beginning again. That means the exercises aren’t as intense. I was pairing them with chair cardio everyday but knew that wouldn’t be…
Hopefully I am through the worst of it now. Yesterday was pretty bad. I believe my exact words to my mom were, “I am four breaths shy of death”. There wasn’t a spot on my body that didn’t hurt. It’s a good thing these infusions happen every six months because you have plenty of time to forget. I can even go back and look at past blog posts and see exactly how I felt. However, it’s a little different each…
