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Tag: MS

A week in the life of Multiple Sclerosis

A week in the life of Multiple Sclerosis

A week in my MS world. I already had my rant of distress this week. So far the week has been better but it’s Thursday and I still have a lot going on.  If you have MS maybe you’ve heard of the studies of biotin in high dosages that seem to help people with more progressive stages of the disease.  This study which was done in the US is still small but larger ones have been done in other countries….

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MS is a tough disease

MS is a tough disease

I don’t like to rant. I try to keep my blog in a positive state of mind but sometimes I just am exhausted. I don’t need to do much anymore without suffering the consequences.  People who haven’t seen me since the day I left my job would be amazed I would think. I have and continue to get worse. Sometimes my hands get so tired I can’t pick up my fork to eat dinner. My legs not only get tired…

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God grant me the serenity

God grant me the serenity

I don’t think there are many people that don’t know the serenity prayer. It hold true to so many beliefs because it holds true to so many things. God grant me the serenity to accept the things I cannot change. People included. There are so many things in the world just completely outside our control especially other people. I can never control the actions of another no matter how much I want to.  With my child I can hope that…

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Let the sun shine

Let the sun shine

Good morning to all. I woke up in one of those happy moods. I opened up my shades singing “Let the sun shine, let the sun shine, let the shine in” from Hair.  I got my scooter out to walk my dogs and we were all completely tangled by the time the scooter was out of the door. However, once untangled we had a lovely outing that went smoothly. There was no traumatic moments no other dog encounters and that…

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Disability and the roads of friendships

Disability and the roads of friendships

I think it’s happened to most people with disabilities at some point or another that we loose touch with friends as our physical limitations exclude us from activities. Mine happened in two parts. I am one of “those” people that disappear when I’m in a relationship. I know looking back I hurt people because I sided a loyalty with this “loved one” that many of my friends felt wasn’t a good person for me. The problem was I fell in…

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A casual stroll along the boardwalk

A casual stroll along the boardwalk

I did something yesterday I haven’t done in at least 15 years.  I went down to Long Beach and went down the boardwalk. I met a friend who lives right on the ocean front in one of the many beautiful buildings down in Long Beach. She met me on her scooter. Took me to park my car. Put together my scooter and away we went. We went down to from her building to the west ends end of the boardwalk….

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Thankful in the present moment

Thankful in the present moment

Yesterday was a tough day.  I went future tripping on the complete unknown of MS.  I’m got very worked up and scared of the possible needs of my future when my daughter goes to college.  From that point I went into a complete state of panic, sadness and the feeling of being overwhelmed.  I cried throughout most of the day to just about anyone I spoke to.  It was a mentally and physically debilitating day. i woke up today put…

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10 Things I’ve learned since stopping work…I

10 Things I’ve learned since stopping work…I

1. I still have MS 2. Time goes very fast each day 3. The real housewives of any state have a lot of drama in their lives 4. Ive become a hibernating bear in the summer instead of the winter 5. My dogs like it that I’m here or at least that is what I choose to believe 6. I found life needed to be de-cluttered starting with my house 7. I found that I’ve become a great companion to…

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Ahhhhh who expected that gift

Ahhhhh who expected that gift

I woke up today in a bad mood. My body is run down, I’m tired, I was sad just not happy.  I decided not to overdo my workout today which for me is actually a big thing. I only did Zumba for 30 minutes. Now I just want you to have a visual of what happens when I do Zumba  I try to stand up for 3 songs. Mind you my feet can’t move because I have no balance and…

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Overwhelmed

Overwhelmed

This will be one of those rant posts.  I started my day or early early morning waking up from a dream.  One of those dreams where the other person that was in the dream was just mean, hurtful and painful. I woke up and literally looked up and said really.  What am I supposed to learn from that one.  Well it too a while but I did shake off the dream and got up, worked out.  So far normal routine….

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