My handicap van, one of the most life changing things I was able purchase. This took months of research to find grants. Then after finding grants I had to first apply to each and every one of them. Coordinate the grants with each other. I had a fundraiser going in the middle of all of this trying to raise additional funds. I still had to find a van and negotiate a price. Finally I needed to get a car loan…
I truly want to write happy, uplifting blogs but I haven’t been able to do that lately. For every good day I’ve been having a few rough days following. It seems like I’ve been having more rough days than good days. Each time I think I’m through the worst of it, like my infusion, something seems to happen. If it is a tough night sleeping or a great night sleeping, I’m waking up tired. Doesn’t seem to matter. Today I…
I wrote this blog post on November 7, 2016. Almost 4 years ago to the day. I was originally going to just link it in this post when I realized I would probably be repeating the same general things. Obviously Covid has made my MS daily activities null and void but I’m not complaining. Truthfully my MS is much different 4 years later. I’m mostly in a wheelchair now. I’m in a new place, not my apartment anymore. Things are…
Another Friday is here. I don’t know if it’s because I’m getting older or because I don’t do much but these weeks go so fast. I’m not bored Most days I’m amazed at how fast the day went. I use to say the days go slow but the years go fast. Now it seems everything is speeding on by. My daughter is 21. She’s a senior in college. That alone is enough to shock me. However in an old draw…
The most amazing thing happened yesterday, I slept through the night. I’m not talking about until 5 AM, I’m talking about not getting up until 8:30 AM to first use the bathroom. I don’t think that has happened to me once in the last 15 years. I couldn’t believe it. I wasn’t even about to have an accident as I emerged from my bed. I was in total bladder control. It was like a miracle, a gift from the universe….
Still humid in NY. It rained but that didn’t help. However, i did see after tomorrow temperatures start to drop. Cross your fingers. I added another permanent link to an article that talks about different kinds of pain and how it effects sleep. That includes our wonderful multiple sclerosis symptom of restless leg which many of us deal with. They had some very useful tips so check it out. I also have the MS Gym link on my permanent links….
Good Morning to everyone. I think I’m officially through all my infusion side effects now. I’m happy to say I’m doing ok. Now I’m waiting for the New York weather to start resembling normal weather for the end of September. I’m ready to turn of the AC and bring out my comfy sweatshirts I love so much. I find the fact that it is humid very annoying. I love sweating during my workouts but hate sweating when I’m not doing…
First let me say it is difficult to write my blog in my current position. Minx likes to snuggle in my neck. I am not complaining because they are so cute. Plus I’m not having a good day and I need a lot of love. I woke up tired and with a migraine. Not a good combination. The weather in New York is not only warm but humid. Weather, Infusion or just fatigue. I was doing my MS gym exercises…
Yesterday was so rough. Like complete physical exhaustion rough. Wishing I didn’t have to use the bathroom rough. Each time I had to get up was so much effort. Is this still from the infusion? Or is this from the weather change? We’ve had some crazy weather changes over the last week in New York. One day it was 70° then all of a sudden it dropped to 50° I actually had the heat on one day. I was bundled…
