Black Friday for those that don’t live in the states, is the biggest shopping day of the year. It is always the day after Thanksgiving which is ALWAYS a Thursday so this day is ALWAYS a Friday. There are a million sales in every store, crazy deals on merchandise and insane shoppers. Stores open at 12AM sometimes and people show up because the deals only last while the merchandise is in the store. You can’t get near a mall unless…
I hope everyone had a yummy feast yesterday. I had a very nice dinner with my mom, stepdad, sister, brother in law and my daughter. We were a small group but still shared many laughs and lots of love. There were a few things I found humerus because you have to laugh when you have MS: It was the first time I was using the ramp at my mom and stepdads home. There are three ramps in all and the…
Thanksgiving is here again. It’s time for family traditions of certain dishes made once a year with an extremely large turkey that is never eaten and always consumed for at least three days after today. My family all contribute a dish. I always make my carrot soufflé which I’ve learned to make for every single diet I am following. https://multipleexperiences.org/2018/03/16/carrot-souffle-vegan-or-non-vegan/. My mom makes a corn soufflé and the stuffing. My sister makes the soup and sometimes brings a vegetable. We…
Do you self diagnose yourself through the internet? I have to admit I do and sometimes I’m right. You can look up signs and symptoms and tell what something is like my abscess. I was able to figure that out on my own, with the help of my aid, and google. I probably wouldn’t be able to diagnose MS or a major disease but simple things yes. I think I can logically get an idea. I’ve never jumped to crazy…
I am very happy I bought my Apple Watch for my birthday especially with my recent falls. Apple Watch here I come. The fall detection was one of the main features that made me decide to purchase the watch, although I love it for many other reasons. So I’ve had a few falls now and not once did my watch register the fall. The first fall that happened was right before my watch tutorial with Apple support. When nothing happened…
Another nasty fall on Saturday morning. I took off the towel rack in my daughter’s bathroom for the second time. My contractor asked if I wanted to install a more secure bar like I have in my own bathroom and like an idiot I declined. Now I asked for the more secure bar to installed next time he is here. In the meantime I am using my own bathroom which both my wheelchair can get in and has the safety…
https://youtu.be/emapZzstxzU Another year has gone by and another number added to my years alive. I certainly am not complaining. I am actually grateful. Things were really good this year. My life was completely changed by many people, friends, family and others that barely know me contributing to my fundraiser for my van. This was at the perfect time when walking with my walker was becoming too difficult. This van gave me freedom. I was able to conserve energy that I…
My doctor appointment went as expected. I will be continuing on Rituxan for the foreseeable future. There really is nothing on the market for me to change to at this point. The question about me getting worse, isn’t really a question, it’s more of a fact. That is what secondary progressive MS is, it’s steady decline or worsening of symptoms. That is what I have and they are really no drugs for that, at least for me. Mayzent Is on…
Today is my mom’s birthday, 3 days before mine. Happy birthday mom!!! My birthday is here again. Came fast. My lucky day and number 22. I have no plans because we celebrate my birthday on Thanksgiving. That has always been the tradition. Actually we celebrate both our birthdays on thanksgiving because we are together. This year will be no exception but I am actually going to dinner with my mom tonight too. My stepdad and I have to take a…
I’m sitting in my van outside my mom and stepdad’s house. The home I grew up in but haven’t entered in close to a year. I became unable to navigate the deck steps to get inside. Between those steps and the leaves I can’t even imagine how slippery it is besides difficult. Today I’m here because they are installing a ramp for me through another entrance in the house. Just in time for Thanksgiving. This will be the first time…
