I worked out yesterday for the first time in a month. I was trying to really give my shoulder the time to heal, as recommended by my orthopedic doctor and my physical therapist. I’ve been suffering for almost a year now with tendonitis. My last appointment with the doctor was in early June and I received another cortisone shot. The shots definitely help but can only be given once every 3-4 months and even then is not a great solution….
Well found another thing that can no longer be on my list of things I can do, get drunk. Since the last time I actually consumed a lot of alcohol, other than wine, was over 2 years ago, I had no idea. I went out for dinner with my friend last night and had a very, very dirty martini, my new drink choice. No big deal if I had one, might not have been an issue if I stopped at…
Years ago I participated in a multiple sclerosis activity sponsored at the same physical therapy office I go to now. My main physical therapist started the program 17 years back and became the multiple sclerosis therapist of the office. I attended this program he started once and only once. Why? Every person in attendance was in a wheelchair. I was only 2-3 years into my disease and couldn’t face that, wouldn’t face that, so I never went back. Instead I…
In my four walls of multiple sclerosis, I’m home a lot and I watch a lot of TV. If I read it’s usually self help books but I use to read a lot. I loved serial books which is why I love TV, it’s serial. Forgetting books and reading for now, I wanted to list some of my favorite shows I watched old and new but available on Hulu, Netflixs, Amazon, HBO, SHO, Cinemax etc. these are not in preference…
I’m hibernating for the summer. For most people with MS heat is very difficult. It causes fatigue and muscle weakness, spasms and it basically exacerbates all your current symptoms. They make a cooling vest but let me explain what this thing is. First it’s a vest that comes up to your waist so if closed will nicely accentuate your hips not very flattering. Second it’s this light brown/tan color that is just plain ugly. Third the vest has something like…
I’m 15 workbook lessons from the end of my year doing A Course in Miracles. Not that it means anything really because on day 366, I’m just going to start again. Why? Because now my mind is trained differently and I’ll understand the lessons differently. I’ve learned some amazing things over the year, about myself, miracles, my relationship with God and forgiveness. I felt like telling the story of my most amazing miracle this year, which was my puppy Zoey….
On December 13, 2016, I wrote a blog about Alpha Lipoic Acid and multiple sclerosis. On July 3, 2017 this article was published in medical news today. http://www.medicalnewstoday.com/articles/318225.php Ive been talking alpha lipoic acid now for 7 months. I still take 2 600mg pills a day. One in the morning and one at night. Alpha lipoic acid started about 3 months after starting high dose biotin. Another Vitamin shown that in high doses has stopped disease progression. Since both biotin…
Last year at this time, my first blog post said under construction. I hope you enjoyed my weeks worth of revelations of the past year of blog posts. This week, I thought it was gonna be more of a downtime week, didn’t turn out that way. My aide started on Wednesday. Originally I asked for three days three hours a day. The recommendation of the nurse evaluator was for seven days. My case manager and I decided on three days…
This was the second most popular blog of the year on http://Www.multipleexperiences.org. I was on Rituxan for over a year and would have preferred to continued however for insurance reasons, I’m changing to Ocrevus. My first infusion is scheduled for August 7th. This blog is just a good inside look at the pharmaceutical world of chronic disease. I decided to go a little honest about our pharmaceutical world of MS. There has been so much press and promise over this new drug…
I’ve been so involved with the transition to Ocrevus, that I haven’t talked about that I was approved for the nursing aide by my insurance.The evaluator put the request in for 7 days but I really didn’t want an aide 7 days a week. I wouldn’t even know what to do with someone here that many days. My caseworker told me, with the multiple sclerosis diagnosis, it is easy to get the increases if needed. I decided on 3 days a week…
