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Tag: Multiple sclerosis

Mid-section fat distribution

Mid-section fat distribution

If you follow my blog, you may have picked up by now that I’m scale obsessed. For anyone who just happened to stumble upon my blog, I’m scale obsessed. I keep a close enough eye on things to know I haven’t gained any significant weight. I bounce around a five pound mark but that’s about it. I’m not thin, by any means, but I’ve maintained my current weight and size for years. I’ve held my hourglass figure my whole life,…

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My guilty pleasure

My guilty pleasure

My guilty pleasure…, I watch all the real housewives. I know a very odd admission but I watch each installment of the franchise. It’s my guilty pleasure. Look I have multiple sclerosis, I need a fun sort of pointless fun. It’s entertainment watching all these extremely wealthy women argue over the stupidest shit. I may have a girl crush on Erika Giraradi aka Erika Jayne, i definitely have a crush on Lisa Vanderpump. I started watching Dancing with the Stars,…

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Forgive and forgiving

Forgive and forgiving

We’ve all said things or did things that we regret, we’re human. It’s very hard to forgive someone who hurt us and even harder to forgive ourselves. We replay the story over and over and over in our heads, punishing ourselves maybe hoping for a different outcome. Definitely trying to justify our actions and why we did whatever we did. I had a wicked fight with my daughter last week and she didn’t do anything really. We made a deal months…

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Counting spoons

Counting spoons

I’ve been up since 4am, listening to old episodes of Cheers, while I laid in bed praying I’d fall back asleep. Even Zoey and Marshy were snoring away, but not me, I just laid there, hour after hour. I finally gave up at around 7:30 and made coffee. I start each day with a certain amount of steam in me that fizzles as the day goes on. How much steam I start with can vary everyday. I read on a…

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High dose biotin for MS month 6

High dose biotin for MS month 6

I just finished my six month taking high dose biotin. I’m taking 300mg per day as was done in the MS clinical trial. You have to get this higher dosage from a specialty pharmacy. I get mine from Ace Pharmacy online. I was hoping to have a link on my side bar from Ace pharmacy, but I we haven’t linked up yet. This is the website. https://highdosebiotin.net/about-us/ You can call and speak to them, the people there are extremely knowledgable and…

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7 benefits things I’ve discovered since becoming vegan

7 benefits things I’ve discovered since becoming vegan

I became vegan on December 2, 2016. I made the choice because I have multiple sclerosis. I am secondary progressive multiple sclerosis which means I continue to get worse slowly over time.  My symptoms vary and are more or less severe depending on the day, however it’s never great. I decided to go vegan to eat healthier, lower the inflammation in my body and to see if I’d feel any better. This is what I’ve found so far. You have…

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neurological check-up, mentally preparing, Ocrelizumab, MRI

neurological check-up, mentally preparing, Ocrelizumab, MRI

Let me first address the fact that it took an hour and 45 minutes to get into the city for my check up. That means I’m doing nothing for all that time. I was her first appointment that morning. When we do my neurological checks and timed walking, I’m at the best I’m going to be. Therefore the check up is based on this point. However how realistic is it? This is the first time I was her first appointment,…

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Grrrrrrrrrrrrr

Grrrrrrrrrrrrr

 I can’t even write a post today. I know what I wanted to write I just don’t have any more energy to do it. So far this morning I’ve had to go and recopy Social security documents that I sent out yesterday. The reason why is because they were too big to fit behind the mailbox  for the mailman to actually take so my daughter left them in the mailbox and I have no idea if it was actually taken…

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An MRI rant

An MRI rant

It’s a rainy, foggy, and dreary day in New York. I’m a passenger in my own car. I have an early morning appointment at my neurologist in the city. Besides the basic neurological tests, we will discuss the possible switch to Ocrelizumab (Ocrevus) and my MRI results. ive already written about my bulging disk result from the spine.https://multipleexperiences.org/2017/04/01/multiple-sclerosis-symptoms-in-my-head/ My neurologist wrote me yesterday “good news, the brain MRI is stable”. It is good news, I know that. However it’s been the…

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Social Security Disability review

Social Security Disability review

Every morning I sit down with my cup of coffee, and I decide what I want to write about.  Today being no different than any other day. Marshmallow, of course the snuggling up next to me, and Zoey’s running rampage through the house. All of a sudden Zoey comes out running out of my daughter’s room  with a sneaker in her mouth. Wish I caught the actual action shot but had to settle for this instead. I’m up your Social…

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