I received a call at 5:15 yesterday, the reason why is the kicker. The pharmacy didn’t have it in stock they had to order it. Well duh, it is a specialty drug not a stock item, of course it had to be ordered!!!! I not only made this appointment 6 months ago but I recently changed the date from Monday to Wednesday. So I’ve spoken to the infusion place a few times over the last few weeks. You’d think maybe…
I’m seeing my sister from California today. She’s in for a very, very fast visit to New York and is coming out to Long Island for the afternoon. Yippee. I haven’t seen her in a while, she lives so far. I’m excited to spend some time with her today. First this morning I have to go to the doctor, yet again, to re-do bloodwork. Something where they didn’t take enough blood to get the test they required done. I don’t…
I jarred my head something fierce this morning. Getting up to go to the bathroom, my knee buckled, and I went down. I slammed into my floor and I just laid there stunned for a few seconds a little dazed. I just woke up it was little after 6:30, it happened so fast. I decided not to go back into bed to lay down for another half an hour, because I’m not 100% sure that I didn’t give myself a…
I kicked ass this morning. New workout and I stood on my feet for a record of 18 minutes. Omg!!! That’s incredible. Granted my feet can’t move too much, but that’s ok, that was an tremendous amount of time. In physical therapy, one of the main things they do for people with multiple sclerosis, or people that can’t really stand on their own anymore, is put them in a device that either stand them up or strap them in bars…
It’s a vision of white outside my window That’s not snow, it’s fog. I can’t see the water at all. The mist down by the water is definitely something I have to get use too. I’ve woken up many mornings to that view instead of this The fog reminds me of the Stephen King short story called The Mist. I think they made a movie out of it. It’s eerie to look at but also cool in its own way….
I’ve added my Beachbody workouts back into my morning. I know that I push my body to its limit when I do these. I also know my body needs a long recovery time. I usually plan accordingly. Today, I didn’t plan on issues with Zoey too. I had to stop my workout to “clean up” after Zoey. Not normally a big deal but my legs were already 20 minutes into the workout. I ended up sliding down on the floor….
When I first was diagnosed, maybe in the first 10 years, I have to admit any little thing I felt I used to think immediately it was the multiple sclerosis. It took me a while to kind of know how MS showed in my body, really what MS was, and how it was going to affect me. Now that it’s been 20 years, I think what I find amazing is when other doctors don’t have an answer so they blame…
It’s Sunday and I usually post a song or a recipe. I kind of take the day off with the blog. However today I’m gonna write a quick post about falling. I still fall a lot. I walk with a walker all the time but I still have moments that I can explain I just lose balance. I was on the side of my bed, cleaning up my dog area, my bed and the wall right next to me and…
It just dawned on me, that February 14 was my 20 year anniversary with MS. It was the weekend of February 14 that I was moving it to my house with my ex-husband. My left leg started to feel numb. The numbness started traveling up my leg through my muscles. I wasn’t just numb, my muscles were becoming week and atrophied. It was The following Friday I went to a family doctor who sent me immediately to this neurologist. To…
I’m putting on my shoes to go to the doctor about the swelling that’s going on in my lower legs, ankles and feet. I noticed that maybe the right one looked a little less swollen, but I put my shoes on anyway so I can go to the doctor. When I got to the doctor a game plan was almost already in place before she even looked down at my feet. She touch my feet, she looked at the rapid…
