I’ve said many times that I start to write my blog with one idea and it goes a completely different way. Sometimes the blog writes itself. This is what happened yesterday Summer heat hibernation and my own multiple sclerosis realization. I certainly wasn’t planning on addressing the idea of more aid hours. I’ve pushed back on this, against my family’s concerns, because I need some alone time. It’s probably why I never have a problem being home. I’m with someone…
I’m back with an agency and as of 5pm Friday they had no one for me on Monday. We are off to a great start. They told me it’s because of my dogs. They have difficulty placing aids in households with animals. Well I’m not giving up my dogs so if I have to change agencies 100 times, so be it. I’m sure my current aid, whom I love and done all this stuff for, won’t be taking time out…
Today is the first day I woke up not feeling tired. It was such a wonderful feeling. I haven’t had that in so long. I can’t say how the rest of my day will go but for all my bitching lately it was nice to start off my blog with some good news. I still canceled playing mahjong today. Unfortunately I knew that I probably wouldn’t have the stamina to last too long. However I still worked out. I even…
I had another fall the other day. I wouldn’t say it was a bad one but I did hit my head on the toilet bowl. It didn’t even register as a fall in my Apple Watch. I kind of fell in slow motion and nothing hit hard but my head. I’m left with yet another bruise and another lucky incident. I’m going to run out of those. I think that life on my feet is at an end. Safety first!!!!…
It’s Saturday which means I don’t have my aid. I love my aid, I truly do. I’m so grateful for everything she does but I look forward to my weekends and my alone time. Is that bad? It is nice to get out of bed whenever I want and get dressed whenever I want. Sometimes I even stay in pajamas all day. My week is still busy enough to tire me out. It doesn’t take much. I like to watch…
Today my insurance company is sending in a nurse to do a six month review. This review dictates my aids hours and you just never know what is going to happen. I was changed to this plan back in July of 2018 when I became Medicare eligible. They continued with the same level I was currently receiving. My aids hours are actually covered through my secondary plan which is a Medicaid HMO plan. I have never had a problem with…
It’s been less than 48 hours that I’ve been on vacation and my multiple sclerosis has not been easy. Half of my clothing I’ve worn so far has been washed due to bladder issues. Not a fun way to start. Really MS, you couldn’t keep that shit together for a few days? I’ve had countless people helping life me feet up small steps or onto golf carts from my family to hotel staff because my legs are far from cooperating….
The assessment today though is important because it’s with my actual insurance company. I already spoke to my case manager who is so awesome and called me back on her private line. She explained to me if they try to give me less hours not to sign anything. This way the case goes into review and more than just this one nurse assessment has a say in my hours allocated. I’m not nervous because it is what it’s going to…
In the last year I’ve been battling a 8-10lb weight gain. The weight gain came on over a couple of months towards the end of last summer. This was when i had to stop working out because of shoulder tendinitis. At that point I joined weight watchers. I would spend each week tracking everything I ate losing weight one week to gain it back the next week. In the end I wasn’t losing anything and I was just getting frustrated….
Two amazing things happened over the last two days that I have to tell you about. Yesterday I actually swam in the pool. I do the shorter side of the pool as opposed to the length for safety reasons. My poor aid doesn’t want to have to deal with jumping in and trying to save me where I can’t touch the bottom. There I was, back and forth and back-and-forth for almost a full half an hour in the pool….
