Shocking I know. This time there is a portion of my error involved. I told them last month my secondary insurance was Aetna, technically it is not. It is only secondary for certain things otherwise my secondary is Medicaid. What I’m not in error about is once again the infusion place waited until last minute to verify insurance. Since the information was wrong, they needed more notes from my doctors and couldn’t get approval done in time to order the…
https://www.medicalnewstoday.com/articles/323006.php New multiple sclerosis culprit identified It is still unclear what causes multiple sclerosis, but new research closes in on the faulty immune system mechanisms involved in the development of this condition. New research has identified another type of immune cell that may play a role in MS. Multiple sclerosis (MS), which is an autoimmune disease, causes the immune system to mistakenly attack myelin. Myelin is the substance that coats axons, which are the projections that allow neurons to connect…
Let’s see if I can have one of my infusion without any issues. I’ve already received the call to verify my new insurance information and have heard nothing since. Last time was the mistake where they once again order the split in the medicine and I did 300mg two weeks apart when I was supposed to take the full dosage of 600mg one time. So even though I’ve been on Ocrevus now for over a year, I still have yet…
Continuing on with my original post I wrote the other day https://multipleexperiences.org/2018/08/15/flu-like-symptoms-while-im-swimming/. I had one comment from another person with MS. She explained that any time she over exerted herself she had flulike symptoms as well. Thank you Priscilla for your comment. She even said if she continued overexert herself she can actually come down with the flu. I asked her what drug she was on for MS, if any, and she was taking Rituxan. I am currently on Ocrevus…
I’m happy to report I was discharged from the hospital last night. One thing I know, from my career working in nursing homes, hospitals like to discharge on Friday to make room for the weekend influx. The infection disease doctor would have held me to today but I really wanted to go and the main doctor was for it. So what did I learn from this? First of all this happened from a simple fall. The fall gave me a…
I’ve never been a believer in oils or vitamins but the results made me a believer. Every family should own the family essentials kit. It can replace most of your medicine cabinet. I can’t live without OnGuard and Oregano. I use it every time I feel like I’m getting sick or I’m near someone getting sick. With MS I take Ocrevus which wipes out my immune fighting B-cells. Other than a few days here and there I made it through…
I’ve been asked this question quite a number of times so I thought I’d address this in my blog. I’m asked, do you feel any better since you’ve been on Ocrevus? Where I’d love to give a wonderful answer here, the answer is NO. however it’s also very important to answer, I also don’t feel worse. When I was on Tysabri, I was still feeling worse month to month. That’s why we made the switch originally to Rituxan, which is…
Every six months it’s hard to remember what happens. I should look back to my own blog posts. I was so wrapped up in how the steroids made me sick that I forgot that they would also give me burst of energy. It explains how I stood for a half an hour during a work out. This week that burst of energy went from 100 to about 30. I wrote that my workout was pretty bad in terms of stamina…
Two amazing things happened over the last two days that I have to tell you about. Yesterday I actually swam in the pool. I do the shorter side of the pool as opposed to the length for safety reasons. My poor aid doesn’t want to have to deal with jumping in and trying to save me where I can’t touch the bottom. There I was, back and forth and back-and-forth for almost a full half an hour in the pool….
I’m happy to say I’m all done with Ocrevus for six months. I just have to deal, of course, with the side effects from the steroids. I have to be honest too, these medicines and these infusions mess with my mood. I feel like I haven’t been my happy self in so long. I’m back to living in my four walls of a MS because I haven’t left my apartment. I’ve gone out for physical therapy and a couple errands…
