You might be asking, why does it matter that I’m taking Ocrevus and I have a cold? It’s important to remember what Ocrevus does. Ocrevus depletes B lymphocytes, a white blood cell in our immune system. Ocrevus is an autoimmune suppressing drug. Something as simple as a cold, may not have the same effect on me as it does the person I caught the cold from. For me, this cold has put me in an psuedo-MS attack. A pesuedo-attack is…
My favorite person came home from college last Thursday with a terrible cold. Poor thing was so sick. I wasn’t even sure it was just a cold. I thought she could perhaps have a sinus infection. However come Sunday the pressure in her head was somewhat better and she didn’t want to go to the doctor. I thought I was being careful around her so I didn’t get sick but alas, she shared my giant jug of water I always…
The universe works in weird ways. If you ever pay attention you’d see some amazing things. Yesterday the craziest things happened but I have to first start with what happened the day before. For a while I’ve been wanting to reach out to my old boyfriend. I just wanted to stop pretending to hate him. I wanted to be able to text him every once in a while to say, “hi, how are you?” He gets an inside look into…
There are steps recommended to prepare for your doctor appointment. Write down any new symptoms you’ve been experiencing if this is your ongoing doctor or all symptoms if this is a new doctor. Bring any test results you’ve received from any other doctors even if you don’t think they aren’t relevant. Have a list of all the medicine you are currently taking which should include anything non-prescription as well. Make a list of you questions or concerns before hand. If…
Yesterday was a rough day. I was very uncomfortable and tired. It happens but the good news is I knew WHY it was happening. I slept a lot yesterday. I took a 2 hour nap on the couch with my fur babies on either side. Even with the nap I still went into bed at 9:30pm. I feel less fatigued today, I don’t feel that weight in my bones but my skin is still sensitive. I HATE steroids. This was…
I had to be honest and let others know in case it happens to you, I haven’t been feeling great since my Ocrevus infusion on Wednesday. I expected the day of the infusion to feel lethargic and tired because of the Benadryl coming through the IV, but I am still feeling that way. It is Friday morning and anyone with MS will understand me when I say my bones feel so heavy. My skin is super sensitive which is definitely…
Yesterday was the second part to my Ocrevus infusion. My next appointment is February 26, 2018. The all the headaches that it took me to get on Ocrevus and then all the headaches it took getting the infusion site, I’m happy to say I am done with this infusion. As expected, the infusion was smooth I had no allergic reactions of any sort. Other than being extremely tired from the Benedryl that goes through the IV line, I felt fine….
That was the message I received on my answering machine at 3:42 on Friday afternoon. I, of course, didn’t hear this message until late Friday night because I was in the city moving my daughter into her dorm. Of course this was Friday, they are closed Saturday and Sunday and my infusion was scheduled for Monday. Of course they offered no explanation as to WHY this was cancelled…was there another insurance issue? Drug issue? No idea. Just your appointment on…
I blogged about this months ago. What’s amazing and messed up is I couldn’t get my insurance to pay for Rituxan forcing me to go on to Ocrevus when it cost so much more. I thank my stepmom for sending this to me this morning. It makes no difference but shows how the big business of the pharmaceutical world works. Is it ever only about the disease… https://www.bloomberg.com/news/articles/2017-08-23/how-roche-tweaked-an-aging-drug-to-keep-profits-rolling-in?cmpId=flipboard
My dad and I were talking about me having multiple sclerosis. He was saying it wasn’t fair, I have a good heart. My first words were I still have a good heart, that hasn’t changed but I knew what he meant. I heard this before from him, from my mom, my stepdad, from most of my family. They look at multiple sclerosis “stealing” away part of my life. I’ve discussed this topic a few times in my blogs. …
