I am going to attempt to play mahjong today with the girls. This will be my first time since December. I am looking forward to playing. I also hope I can play. It would be a shame if I am still too weak to play. I have had enough reminders as to where I am today as opposed to where I was. Mahjong is my favorite and I really don’t want to be discouraged by something else. I put off…
Yesterday was not such a great day. I wasn’t even able to get through my workout. I was interrupted by a trip to the bathroom that unfortunately showed my fatigue. I must give myself credit here because we all know I usually push instead of stopping. Persistent isn’t always a good thing. I had physical therapy later in the day and I did some walking. However I hit fatigue fairly quickly with that too. Things went downhill from there. The…
Well I was very wrong about the fireworks. I thought everything was canceled but obviously that wasn’t the case. Where the fireworks in my town were canceled, other towns weren’t. I saw all the fireworks going off all across the horizon. It was extremely cool. Of course there were still fireworks set off close to my house as well. So much for them being illegal in New York. I had a great show to watch for over an hour. My…
Happy Monday. My aid just told me I look tired. I’m always tired. I can sleep for 24 hours and I’d still wake up tired. I just did my little cardio workout but i was tired. It doesn’t ever matter, I’ve just learned to push through the feeling as I have always done. I bought a treadmill way back when I was still married living in my house. It was used for a total of a month tops before it…
I’ve been up since roughly 4 AM. I couldn’t even tell you why. I think I’ve watched an entire season of friends before I finally gave up and got out of bed. I suffer from headaches all week this week I’ve been home for three days because my aid’s son was sick. I’ve watched a lot of Netflix including part 2 of Making a Murderer, the Staircase and the Ted Bundy Tapes. I worked out every single morning even with…
I AM SO TIRED I AM TIRED OF BEING BRAVE I AM TIRED OF PRETENDING IM NOT SCARED I AM TIRED OF TAKING A SHOWER AND LOSING EVERY OUNCE OF ENERGY I HAVE IN MY BODY I AM TIRED OF DOING THE RIGHT THING AND IT STILL BITING ME IN THE ASS I AM TIRED OF ALWAYS TRYING TO BE POSITIVE ALL THE TIME I AM TIRED PRETENDING I DONT HATE YOU I AM TIRED OF BEING ALONE IN MY…
I haven’t slept well in 2 nights and we all know how great that goes with multiple sclerosis. I know why but don’t know if I’m ready to say it yet. I bit off more than I can chew at the present moment. Something I always wanted to do but it required a lot more than I realized. However it’s too late now I made a commitment. I don’t want to hear the I told you so from the people…
