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Tag: Tysabri

Drug Zinbryta, used for treatment of multiple sclerosis, pulled from market

Drug Zinbryta, used for treatment of multiple sclerosis, pulled from market

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(CNN)In a rare move, the companies that make the multiple sclerosis drug daclizumab (brand name Zinbryta) have voluntarily pulled the medication from the market and stopped all clinical studies after reports of eight cases of serious brain inflammation among patients in Europe Read the full article here: https://www.cnn.com/2018/03/02/health/ms-drug-daclizumab-pulled-bn/index.html Each one of the drugs we take to keep as well, has side effects. You have to weigh the odds, the pros and cons of each of these medicines. I’ve been taking…

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Multiple sclerosis changed my life many times

Multiple sclerosis changed my life many times

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This blog was inspired by another MS blogger, who like me, has had this disease along time. Her positive spirit is always an inspiration. https://trippingthroughtreacle.com/2017/11/28/accept-adapt-succeed/ It wasn’t one time, it’s been many times. The first was the day I got my diagnosis. I didn’t understand what MS was. There wasn’t an internet yet I could search. I had to look it up in an old set of encyclopedias that were in my home. It had maybe two paragraphs in the…

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Disease Modifying Therapies in MS, do you take them?

Disease Modifying Therapies in MS, do you take them?

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I received a comment yesterday, on an older blog, about my Ocrevus infusion. What I found interesting is she’s had multiple sclerosis for 36 years and she’s first going on a disease modifying therapy. First of all I have to say, 36 years within any DMT, that is amazing!!! I know other people like that or that have stopped taking any of the disease modifying therapy drugs for a variety of reasons. I never had that option. My multiple sclerosis…

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My little French bulldog protector

My little French bulldog protector

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I am finally feeling a little better. I got some Musinex yesterday which helped but the pounding in my head finally stopped too. I still don’t feel great but the fog that swept over my head and body has mostly lifted. I must again say with warning to anyone on an immunosuppressive drug be smart around others with any kind of sickness. I’ve was on Tysabri for almost two years and Rituxan for over a year and a half and…

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Ocrevus infusion not looking good for Monday due to insurance

Ocrevus infusion not looking good for Monday due to insurance

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Can you sue an insurance company for stress? I know you can sue debt collectors if their actions cause undue stress. I was wondering about insurance. The stress that I’ve been under for this last week dealing with my insurance is ridiculous. Everyday I speak to them I get a different answer. Yesterday I was told they were waiting for clinical notes and a copy of my last MRI showings I have relapse remitting MS. I can understand if this…

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Ocrevus infusion still not approved, I kid you not…

Ocrevus infusion still not approved, I kid you not…

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You can’t make this sh@t up. I get a call from the girl working on my infusion authorization, my insurance company wants to know the name, address and telephone number of my pharmacy where I am currently getting my prescriptions. The girl who called me really tried to be professional as possible but had the same reaction I had which was… WTF???? Will you be sending Ocrevus to my local CVS for me to pick up and take to NYC…

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Rituxan infusion possible side effects-a patients perspective

Rituxan infusion possible side effects-a patients perspective

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As expected I was extremely tired after. It’s because of the large amount of Benadryl that is given. I was in bed asleep by 9:00. I’d love to say that was unusual for me, but during the week that’s my normal bed time.  I woke up with a little stomach ache. That can be a number of reasons but it is listed as a side effect of the rituxan. I don’t remember it from any of the other times I…

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The multiple sclerosis attack that pushed me over

The multiple sclerosis attack that pushed me over

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I was starting to “leak through” my current multiple sclerosis therapy back in 2014. I had been on basically Betaseron most of the time until I switched to Gilyenya in 2010. I was switched for the “leaking through” thought. It was holding me on the relapsing remitting sides mostly. I’d have maybe one or two per year on all the drugs. However I would worsen without a so-called attack. My current symptoms would worsen. Back in 2014 the decision was…

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