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Author: Youtwohearts

A day in the life with multiple sclerosis.
Relapsing Remitting and Secondary Progressive MS, a combination of both

Relapsing Remitting and Secondary Progressive MS, a combination of both

It’s 20 years that I’ve dealt with my multiple sclerosis. When I first started doing research on my own illness, it was stated that most people go into the second stage of the disease after about 10 years. The second stage of the disease being secondary progressive MS. Most people start off in relapsing remitting and, at the time, it was said that 80 percent of people in this stage will go into secondary progressive around that 10 year mark….

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Moving stinks

Moving stinks

OK moving should come with a gigantic warning, this was horrible. I thought I was so prepared. I wasn’t! I think moving would be hard for anybody, but adding multiple sclerosis to it is just a recipe for disaster. Unfortunately, in the morning my aid was running late so that left the beginning of the day on me. I had a couple things left to pack up. I didn’t think it was gonna be a big deal, IT WAS A…

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Adjusting 2 dogs to their new home

Adjusting 2 dogs to their new home

For first time ever, there really might not be a post for me tomorrow. Tomorrow is my move day. As of tomorrow, everything is going to the condo including Zoey and Marshmallow. I’m a little concerned about these two. I would’ve liked to have had them there before tomorrow but it didn’t work out. I was going to bring them over but it turns out my painter is allergic. I know for them it would’ve probably been better if they…

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Boomer, my English bulldog a year past

Boomer, my English bulldog a year past

First I wish everyone a very merry Christmas. Where I am, it’s a white Christmas. I woke up to this… However beautiful today is, it also marks a year since my Boomer passed away. He was my first dog I ever had. It hit me very hard when he passed because I wasn’t expecting it. He waited for me to come home and I was so fortunate to see his last breath leave his body. At the time I didn’t…

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Wretches and Kings by Linkin Park

Wretches and Kings by Linkin Park

Veering far off the Christmas course with this one. I realized I was missing an entire album. AN ENTIRE ALBUM from my favorite band!!!! How did that happen? I had songs from the album so it always showed the album cover. I never realized. It was like an early Christmas present to unwrap. So far this is my favorite song. https://g.co/kgs/XC7BgG Wretches and Kings There’s a time, when the operation of the machine becomes so odious Makes you so sick…

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Thank you to all

Thank you to all

Good morning. I’d love to say I’m sending you this from sunny Saugerties but unfortunately it’s rainy out and dreary. That’s ok I don’t mind. I’m with my family having a great time. We played Taboo last night. If you never played, it’s a game of teams where you have to get your teammates to guess the word on the card without saying specific, or taboo, words. It was a riot. I wanted to say something to all my email…

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Let the festivities begin

Let the festivities begin

The car is packed and we are ready to go. The car is packed to the gills I should say. There is barley enough room for me to sit. I have to laugh because I’ve been warned that I have no gifts this year. My reply was you bought me a condo, I think I’m ok. I’m more excited to give out my gifts anyway. They may be small but I think I did well. We are going up to…

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In my defenselessness my safety lies

In my defenselessness my safety lies

I’ve had a blog about this in the past. This is from a course in miracles, and is and always will be my favorite lesson. It was always the hardest lesson for me learn because I am the queen of defense. When someone would say something to me, I always jump to my own defense. If I felt backed into a corner, I would claw my way out. Am I cured, absolutely not, but I’m a 1000 times better. The…

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Have a very happy hump day

Have a very happy hump day

It’s the hump day. That middle of the week where it’s all downhill to Friday. I’ve been up since roughly 5:30 this morning. I’m exhausted. I couldn’t sleep. I should change that, I couldn’t fall back to sleep. Not sleeping is like an instant bad day with MS. I just wrote the ticket for the day. Not that I could’ve controlled it, I just know how my body is when I don’t sleep. My daughter was up all night studying…

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Searching for an answer

Searching for an answer

I blog every day. However I have to admit, some days I have no idea what to say. I just start writing and whatever comes out, comes out. I ended up putting a title on it at the very end. Today is one of those days. I can write about packing and how tired I am, but I think I’ve expressed that I’m about 8 blog posts already. I made an appointment with my neurologist on Thursday to discuss what…

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