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Author: Youtwohearts

A day in the life with multiple sclerosis.
Amazon’s Sound of Metal

Amazon’s Sound of Metal

Have you ever watched a movie that depicted someone that had the same illness or problem as you and it was depicted almost incorrectly? Yesterday I watched the movie from Amazon called Sound of Metal. It’s about a drummer who loses his hearing and ends up in the deaf community and ultimately decides to get the cochlear implant. My daughter was born with a progressive hearing loss and at the age of three she got her first Cochlear implant and…

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Amazon’s Sound of Metal

Amazon’s Sound of Metal

Have you ever watched a movie that depicted someone that had the same illness or problem as you and it was depicted almost incorrectly? Yesterday I watched the movie from Amazon called Sound of Metal. It’s about a drummer who loses his hearing and ends up in the deaf community and ultimately decides to get the cochlear implant. My daughter was born with a progressive hearing loss and at the age of three she got her first Cochlear implant and…

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Spreading holiday joy

Spreading holiday joy

I went around my building yesterday spreading Holiday Joy. Every year I buy Mrs Prindable apples to give as gifts for the holiday season. This year I decided to give them to my friends in my building and some other people that are around me. I had my gifts for the people that work in the condo, my apples, my mask and out I went to spread joy. I didn’t call ahead to say I’d be coming so I was…

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My aide is back and helpful tips from my Aunt

My aide is back and helpful tips from my Aunt

Hello again, it is once again Monday. I’m very happy to say my aide will be here today. Unfortunately, it will take me some time to recover from the last week doing it mostly alone. Even having food prepared and only doing what I absolutely had to do, it was a rough week. There is a reason I have an aide. I sometimes feel like it is really just to babysit me but truth is the amount of energy it…

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My review of the massage gun

My review of the massage gun

I have to talk about my purchase of the massage gun. A massage gun for spasticity. I wanted one for some time but kept putting it off. They weren’t cheap. I kept thinking is they’d be like those massagers you got at drugstore that you used for a week and never used it again. These are NOT the ones sold at the drugstore. I learned that really fast. First thing these are super powerful. I have not had the power…

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Not exactly a snowstorm

Not exactly a snowstorm

An uneventful snowfall, as they said it would be, for my area. Not the blanket I was hoping to wake up to but pretty I guess. I was watching this car for a bit as it’s tires kept spinning. He was unable to find traction to get out of the lot. o I learned the hard way that the same traction need holds true for wheelchairs. Any snow or worse ice and my wheelchair can easily get stuck. A patch…

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Mid week review

Mid week review

Well the major snowstorm that is going to pound the northeast is going to leave significantly less on part of Long Island. I’m located in that part. We should only see 3-5 inches by the end. We will get the sleet mixed with rain making for a more snowy mess than a beautiful snowy blanket. Oh well. I still haven’t had my aide so it’s been just me holding my own. I’m doing ok. I of course haven’t been able…

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Let’s talk medication side effects

Let’s talk medication side effects

Good morning. It’s a beautiful sunny morning here, the calm before the storm. The snow is coming tomorrow afternoon through Thursday morning. I have no where to be so I’m all good. Looking forward to watching the first snow fall of the year even though the majority will fall overnight. I have been wanting to discuss medications for the longest time. I take a lot of pills each day due to my multiple sclerosis and because of my migraines, which…

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Happy Monday Morning

Happy Monday Morning

Happy Monday morning. Slightly dreary here with light rain and cloudy skies but that’s ok, I’m not outside. I heard we may be having our first snowstorm this week. I’m not sure what the current predictions are but I do love the snow. Granted I become even more trapped in my home when snow falls because wheelchairs don’t like snow piles or sheets of ice. I don’t even mind because I’m mostly home anyway and everything delivers. I love the…

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Happy Monday Morning

Happy Monday Morning

Happy Monday morning. Slightly dreary here with light rain and cloudy skies but that’s ok, I’m not outside. I heard we may be having our first snowstorm this week. I’m not sure what the current predictions are but I do love the snow. Granted I become even more trapped in my home when snow falls because wheelchairs don’t like snow piles or sheets of ice. I don’t even mind because I’m mostly home anyway and everything delivers. I love the…

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