Browsed by
Author: Youtwohearts

A day in the life with multiple sclerosis.
Support my Brother in Bike MS

Support my Brother in Bike MS

Comments 0 Comment

My brother does this every year and every year with me in mind. Please consider donating to a cause that is near and dear to me and my family plus too many other suffers. https://mssociety.donordrive.com/index.cfm?fuseaction=donorDrive.participant&participantID=16843&cmr=5282CE675756&language=en Dear friends,  Each year for the last 12, I’ve raised funds for BikeMS, to directly help those affected by this terrible disease funding research by the MS Society. This year, I’m falling short in my fundraising goal. This is not surprising – people are out…

Read More Read More

My next big project/accommodation

My next big project/accommodation

Comments 2 comments

My handicap van, one of the most life changing things I was able purchase. This took months of research to find grants. Then after finding grants I had to first apply to each and every one of them. Coordinate the grants with each other. I had a fundraiser going in the middle of all of this trying to raise additional funds. I still had to find a van and negotiate a price. Finally I needed to get a car loan…

Read More Read More

Exercising is not optional

Exercising is not optional

Comments 2 comments

I truly want to write happy, uplifting blogs but I haven’t been able to do that lately. For every good day I’ve been having a few rough days following. It seems like I’ve been having more rough days than good days. Each time I think I’m through the worst of it, like my infusion, something seems to happen. If it is a tough night sleeping or a great night sleeping, I’m waking up tired. Doesn’t seem to matter. Today I…

Read More Read More

My four walls of multiple sclerosis

My four walls of multiple sclerosis

Comments 4 comments

I wrote this blog post on November 7, 2016. Almost 4 years ago to the day. I was originally going to just link it in this post when I realized I would probably be repeating the same general things. Obviously Covid has made my MS daily activities null and void but I’m not complaining. Truthfully my MS is much different 4 years later. I’m mostly in a wheelchair now. I’m in a new place, not my apartment anymore. Things are…

Read More Read More

My Sakara Journey begins

My Sakara Journey begins

Comments 0 Comment

I was sent an email by my beautiful cousin about this company I never heard of Sakara. She told me I needed to check them out. Anything my cousin recommends is usually worth looking into, so I checked it out. https://www.sakara.com/. It was everything I’ve been looking for in my vegan lifestyle. I wanted a really good food delivery because let’s be honest cooking with progressing multiple sclerosis is becoming harder and harder. My meals become repetitious because it’s my…

Read More Read More

My Sakara Journey begins

My Sakara Journey begins

Comments 0 Comment

I was sent an email by my beautiful cousin about this company I never heard of Sakara. She told me I needed to check them out. Anything my cousin recommends is usually worth looking into, so I checked it out. https://www.sakara.com/. It was everything I’ve been looking for in my vegan lifestyle. I wanted a really good food delivery because let’s be honest cooking with progressing multiple sclerosis is becoming harder and harder. My meals become repetitious because it’s my…

Read More Read More

Time goes by quickly and slowly

Time goes by quickly and slowly

Comments 2 comments

Another Friday is here. I don’t know if it’s because I’m getting older or because I don’t do much but these weeks go so fast. I’m not bored Most days I’m amazed at how fast the day went. I use to say the days go slow but the years go fast. Now it seems everything is speeding on by. My daughter is 21. She’s a senior in college. That alone is enough to shock me. However in an old draw…

Read More Read More

Great sleep feeling good

Great sleep feeling good

Comments 0 Comment

The most amazing thing happened yesterday, I slept through the night. I’m not talking about until 5 AM, I’m talking about not getting up until 8:30 AM to first use the bathroom. I don’t think that has happened to me once in the last 15 years. I couldn’t believe it. I wasn’t even about to have an accident as I emerged from my bed. I was in total bladder control. It was like a miracle, a gift from the universe….

Read More Read More

New links on page…Happy Birthday Lizzy

New links on page…Happy Birthday Lizzy

Comments 1 comment

Still humid in NY. It rained but that didn’t help. However, i did see after tomorrow temperatures start to drop. Cross your fingers. I added another permanent link to an article that talks about different kinds of pain and how it effects sleep. That includes our wonderful multiple sclerosis symptom of restless leg which many of us deal with. They had some very useful tips so check it out. I also have the MS Gym link on my permanent links….

Read More Read More

Verified by MonsterInsights