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Author: Youtwohearts

A day in the life with multiple sclerosis.
End of summer marks next Rituxan infusion

End of summer marks next Rituxan infusion

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Is summer over yet? I’m ready to put on my oversized sweatshirt. It doesn’t matter that I stay indoors with AC the humidity penetrates to my bones. I know this question was asked by Steve over at MSich Chronicles http://msichchronicles.blog/2020/07/29/evansville-heat/, but how do people with MS live in hot, humid places? I’m in countdown mode until I can officially say its Fall. Right around the time of my next Rituxan infusion. For any new readers, I switched back to Rituxan…

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Moments of my weekend

Moments of my weekend

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This was a weekend of great ideas and completely mindless moments. I thought I’d share them all for you: I pulled a muscle in my butt. In my stronger leg. I was stretching in a simple position. As soon as I pulled the leg up, I felt it. No big deal except, this is normally the favored leg to push myself up to stand with. That move is freaking painful. However, I kind of don’t have a choice. It has…

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Something good about insurance

Something good about insurance

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I spoke with my case manager for my insurance today. Before Covid started, I had a really wonderful case manager. Every month she’d call and check in, as per her job description, but she always made me feel like she genuinely cared. She remembered things about me not necessarily related to my medical case. Then one day she was just gone. I didn’t know if Covid was the reason for the change, if she quit or left, I just had…

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My big comfy chair

My big comfy chair

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The aftermath of the tropical storm that hit the other day continues. My mom and stepdad have slept over at my house the last two nights. I’ve given them my bedroom and I slept on my comfy chair. I slept quite well both nights I should add. Zoey and Minx slept with me and they seemed as comfortable as I was. I was almost too comfortable, like enough where if I was tired I could easily sleep on my chair…

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Really good multiple sclerosis research news

Really good multiple sclerosis research news

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This is the best news article I’ve come along in a long time. It was titled: ‘Holy Grail’ MS discovery could prevent disability using diabetes drug For the first time in ages this talks about stopping the disability not reducing relapses. https://www.sciencefocus.com/news/holy-grail-ms-discovery-could-prevent-disability-using-diabetes-drug/ In MS, the protective coating surrounding nerves known as myelin is damaged causing them to become less energy efficient which makes them vulnerable to further damage and causes disability over time, the MS Society said. < p style=”box-sizing: inherit; margin:…

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I’ll huff and puff and I’ll blow your trees down

I’ll huff and puff and I’ll blow your trees down

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Don’t ever listen to me if I’m giving any opinions on weather again. https://multipleexperiences.org/. My mother and stepdad’s house is surrounded by trees. For 40 years and many, many hurricanes and storms we’ve been worried about one of those trees falling anywhere. These trees survived them all, including superstorm Sandy. Then we get this tropical storm yesterday. We weren’t even directly hit. We had about an hour plus of rain followed by winds. I know they were strong winds because…

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Just a bunch of my opinions

Just a bunch of my opinions

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I’m doing much better with my wheelchair now. I have definitely taken the advice of my therapist and utilized my wheelchair to move me into position. My wheelchair tips from the evaluatorsIt looks something like this: It forces your butt to slide back into position. It took a little for me to get use to because I felt like I was going to tip backwards but that obviously hasn’t happened. It is an unnatural feeling, that’s for sure. I have…

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Another beautiful view

Another beautiful view

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I just finished working out. I’m back on my chair gazing out my windows looking at the sparkling water. I sometimes envy those people on the boats. Especially the ones I see coming fast in the open water before they have to slow down for the channel. I remember vividly how that breeze feels as you fly across the water even though it’s been ages since I’ve been on that type of boat. I also remember vividly how it feels…

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Nobody likes change

Nobody likes change

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After three years, my aid is moving on. She’s changing her hours to work 12 hour shifts each day during the weekend. This way she can make relatively the same hours in less days and be home with her son. With all the uncertainty of the schools new operating hours, who could blame her.  I witnessed firsthand what it was like when she had a homeschool her son. It was hard for every parent but exceptionally hard for someone…

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Doterra oils to the rescue

Doterra oils to the rescue

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I’ve written so many blogs on these oils. I was a consultant trying to make a few extra dollars, that wasn’t for me but it didn’t stop me believing in the products. I have oils all over my house. There are certain ones that I use everyday, like serenity. https://multipleexperiences.org/2018/02/07/serenity-oil-and-my-dogs/ This is still the only oil I use in my bedroom when I’m going to sleep. It works great for me and Zoey. Once we get Minx settled down, it…

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