It used to take me a long time to accept each stage of MS. Each relapse and each steroid treatment it would take time for my head to get on straight to get better. People use to tell me I was so brave but the truth is, I wasn’t, I was in denial. I tried to pretend it wasn’t happening to the outside world. To my immediate family, especially my mom, I cried and complained often. They heard it all….
Another good day with good news for me. My insurance is covering for a new Hooveround MPV5. I bought my original one used a few years ago and I loved it but it always had issues. First of all it doesn’t drive straight. The chair’s steering was always messed up and to get it to go straight meant I had to steer slightly to the right. Sometimes if I went to fast I zigzagged and ran over peoples feet. The…
I went in my pool yesterday for the first time in almost 4 months. It’s the first time I even swam since the middle of January when I was away. My elevator was broken for so long and it is my elevator that is attached to the building with the pool. For me in my wheelchair, I have to go outside to get to the pool when my elevator is broken because otherwise there are steps. Other people wouldn’t have…
I was perfect this week. I tracked my food each day. I was within my point range. I didn’t consume my weekly points. I worked out to the best of my ability 5 days this week. I stayed off the scale so I didn’t let it dictate how I ate. I was excited to weight in at the end of the week. My result…I gained 1.2 pounds. I kid you not. At first I was like WTF but realized this…
I’ve been plagued with these migraines for years and years. I remember when they first started. I was driving home from a meeting and was in heavy traffic. I started to notice my right eye blocking out part of the license plate in front of me. Thankfully I was in traffic because I started freaking out. I didn’t know anything about auras at the time but I knew optic neuritis. I thought I was having the start of an MS…
Made something new this week with my Forks Over Knives recipe app. Thought I’d share it. I love granola bars. This was a great breakfast. I used almond butter instead of peanut butter. Peanut Butter Granola Bars Ingredients ½ cup smooth peanut butter ¼ cup pure maple syrup ¼ cup brown rice syrup 1 tsp vanilla extract 2 cups rolled oats ½ tsp sea salt ½ tsp ground cinnamon Method Preheat oven to 350°F. Line an 8-inch square baking pan…
This morning I was watching people get in their cars and head out for work. There was a part of me that was jealous. Jealous that their life was easy in a way mine wasn’t. I stopped working three years ago. Since then I had to get an aid to assist me 5 days a week, I’m in a wheelchair when I leave my house and I now drive a handicap vehicle. That’s a big change from the days when…
You’d think a simple game like mahjong would be easy for someone with a chronic illness. Any game card or tiles. After all you are just sitting at a table all day how hard is that? Well now add in a weakened core muscles and for some a hint of cognitive difficulty and the simple task isn’t simple. For me, it’s the core muscles. It’s those muscles that hold your body up helping you sit at that card table. It…
Deepak Chopra and Oprah once again teamed up and brought a free 21 day meditation experience on Manifesting Grace through Gratitude. Today is technically day 3. I apologize for sending this late but you still have plenty of time access the other days. https://account.chopra.com/auth?client_key=UZI7gdSRyQ&redirect_url=https%3A%2F%2Fchopracentermeditation.com%2F. I highly recommend this if you have any interest in meditation. I’ve done their free series a few times and it is amazing each time. Please check it out.
Another beautiful day in NY. I love watching the sun glistening off the waterI’m sorry my picture doesn’t do this any justice. I had a long day yesterday getting back to my normal life post infusion. It started with a double therapy. That was physical therapy followed by occupational therapy. I thought putting them together might make my week easier but it didn’t make my day easier. I followed that 2 hour of exhaustion with an eye exam because why…
