I was 27 years old when I was diagnosed with multiple sclerosis. At that time MS had 2 therapy drugs available Avonex and Betaseron. The information on MS wasn’t what it is today because the Internet wasn’t what it is today. I can’t remember how but I joined a support group for multiple sclerosis. I’d say 3/4 of the group were in wheelchairs. At the age of 27, who had recovered 95% from her first attack, this was NOT what…
My life coach says I’m in a growth stage and not wanting to date is perfectly ok. I must admit, originally I thought I’d take a few weeks, a month off, then Boomer, my beloved English Bulldog died. In that grieving time, besides bonding and training a new puppy, I also got to a very good place in A Course in Miracles. I just felt good being alone. It wasn’t a matter of the multiple sclerosis, although that will always…
I have yet to master eating out or going to someone else’s home since becoming vegan. When I say master I really should say try. I’ve dined out maybe 3 times in the last 2 months and my meal consisted of a salad and a vegetable side. I normally try to eat something first so I am not that hungry when I go. When I’ve gone to a friends house I don’t eat there at all. Tonight is Super Bowl…
Enjoying another happy Saturday with my family. I’ve been up very early this morning with Zoey. At 2am I had to clean up her cage she had an “accident”. She hasn’t had an accident during the night in weeks. Ok no big deal all cleaned up and everyone was tucked back in until 5am. I wasn’t surprised since we are up around that time anyway. Then I did something new, I put her in my bed with Marshmellow and I….
Anyone with a chronic disease can tell you that those 4 little words, “you don’t look sick”, is enough to drive them crazy on the spot. I’ve written many blogs about symptoms of multiple sclerosis you’d never see. https://multipleexperiences.org/2017/01/23/multiple-sclerosis-serious-symptoms-respitory-issues/ https://multipleexperiences.org/2016/12/04/multiple-sclerosis-silent-symptoms/ https://multipleexperiences.org/2016/11/28/lets-talk-about-sex-and-multiple-sclerosis/ https://multipleexperiences.org/2016/08/05/im-not-tired-im-fatigued/ Multiple Sclerosis, especially in the beginning, can look silent at first. For the first 8-10 years I had barely a limp when I walked. I would fatigue if I walked too much and by too much I mean…
I received a message on my Facebook from a guy saying how he reads my blog everyday, even though I completely trashed him. He said how he thinks I’m brave and strong fighting my multiple sclerosis, but of course that isn’t what stuck in my mind at all. I couldn’t imagine who I was ever “trashed” to in my blog. I never use names although most of the time the person I am writing about knows it. Then it dawned…
I had the best physical therapy session ever!!! Just one of those days where my legs were super strong and didn’t fatigue to the point I couldn’t walk, like they normally do. I even had enough energy to get to the food store. I needed a few ingredients make my favorite soup. Thought I’d do something different today and share a plant-based vegan soup recipe. I was just so happy how well today went I also had to share my…
During my treatment yesterday, there was a man sitting next to me that I started talking to. The conversation started after he had to take a phone call and felt bad that he thought he was disrupting his neighbor. He apologize for the call and explained his brother-in-law was going in for triple bypass surgery today. He was sitting next to me getting Chemotherapy. I politely explain no need for apologies, I totally understood . From there we…
Most doctor’s do two rounds two weeks apart and then you repeat every 6 months. It will be the same senario as when I posted the first time https://multipleexperiences.org/2017/01/16/rituxan-infusion-day/. I feel bad for Zoey, the 5 month old puppy, today because no one is around and she has to be in her crate for 6+ hours. I feel bad for me because Zoey will have a lot of energy when I get home. Maybe it’s Marshmellow, my 8 year old frenchie,…
