My barking dog

My barking dog

I don’t know what’s up with my little Marshmallow but he’s become very grouchy in his older age. He’s also become even more protective over me. I get him barking when he sees other dogs walking around outside our condo or hears people outside our door. His new thing is barking at the kids or people who come in that may not sit down. He just barks and barks. It’s loud and annoying. He barks at my aid every morning…

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Season change and MS symptoms

Season change and MS symptoms

Does the change of seasons affect your MS symptoms? I know that the actual seasons affect symptoms like the heat of summer or the cold of winter but I mean the transition between the seasons. I’ve had a tough time with my walking lately and with fatigue. My physical therapist says season change. I found this article online http://tamingmultiplesclerosis.com/multiplesclerosis-seasonchangesarticle.html. Usually I feel effects of season changes maybe from winter to spring. It’s unusual for me to feel this way from…

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Keto diet week 2 and intermittent fasting

Keto diet week 2 and intermittent fasting

So week two is done and I lost another 2lbs. I think it is sufficient to say this was the diet for me over weight watchers. I am doing a strict Keto diet according to my Lifesum app https://lifesum.com/. I set my levels for 6% carbs, 20% protein and 74% fat. I did buy the Keto test strips and I do test my urine each morning. It has been the same since about day 4 at a moderate level. I’ve…

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Life coaching for people with a chronic illness

Life coaching for people with a chronic illness

Sometimes it is overwhelming dealing with a chronic illness and navigating through daily life. I know I’ve lived there. I use to unleash it all on my mom. She has so much empathy and I adore her but she doesn’t have multiple sclerosis and she didn’t, she couldn’t, fully understand. I was sad for a long time until I changed my thinking and changed my perception on life. I have a life coach that helps me stay on track and…

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Neurological doctor appointment today

Neurological doctor appointment today

I see my neuro who I’ve been seeing now for over 20 years. These appointments always seem to upset me. Not the doctor, the reality of my disease. It isn’t that I don’t understand multiple sclerosis or I don’t know the current research, I like to think I am somewhat current on the disease. It is more going to a doctor and leaving with the knowledge that your not going to get better. It’s very silly actually because I know…

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Ocrevus infusion side effect gone better than past medicines I took

Ocrevus infusion side effect gone better than past medicines I took

Good morning. I’m happy to report I am finally feeling better. I actually started feeling a little better on Saturday. I went swimming and was able to still get around my condo without having that bone feeling fatigue. So it took about 6 days for me to start feeling better. By Sunday I was good. It was a tough week but I don’t have to worry about the infusion again until March. I can handle that. I remember when I…

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My Saturday gratefulness

My Saturday gratefulness

I love the quiet of the mornings and watching the sun sparkle off of the moving water. My daughter is home for the weekend and she’s happy, loves her school, it is all I wanted for her to experience. Even with my severe fatigue this week, I’ve swam in the pool and have a new appreciation for the repetitive nature of the exercise. I love my condo. This place was made for me from accessibility to my view. I am…

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Post Ocrevus infusion-still kicking my butt

Post Ocrevus infusion-still kicking my butt

Fatigue!!!! That’s the only word I could use. I’ve been exhausted but it’s been in my muscles too. It’s been hard just getting around my condo because of the muscle fatigue. I almost went into my scooter last night. Every step is difficult to take not only in my legs but in my arms holding me up with the walker. I don’t remember feeling this way last time but last time they messed up and split my dose. This was…

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Keto diet week one

Keto diet week one

I must say, I found it pretty easy to do but I had help. I had a menu planner that I purchased for a small price from your Keto diet https://usa.yourketo.diet/. I used that and an app for tracking called Lifesum https://lifesum.com/. It’s really the app that has been a huge help. It lets me track all my food and helps me figure out my targets in each category. I can see if I’m short in fats, high in carbs…

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Endocrinologist visit

Endocrinologist visit

Yup doing that today. Only off high dose biotin for 48 hours. According to my friend who has a thyroid issue and has asked the pharmacy this important question that’s enough. I didn’t have a choice my doctors office made this appointment fearing the worst. Again having NO symptoms of hyperthyroidism other than a high number on a blood test I’m pretty certain I’m fine but my doctor is covering his ass. If anything my symptoms are for hypothyroidism which…

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