Browsed by
Tag: Accepting ms

Where is the real October weather

Where is the real October weather

Comments 3 comments

I’m wearing shorts on October 25th in New York. My windows are open in my house but there is no such thing as global warming. Oh please. This is crazy. https://www.accuweather.com/en/us/new-york-ny/10007/october-weather/349727. In case you actually care, everyday it’s been higher than normal this October. I always said I wanted weather like San Francisco 70 degrees and beautiful each day, guess I’m getting it except we get humidity. Yesterday was so humid and MS doesn’t like humid. It’s like starting five steps…

Read More Read More

Oh yeah I remember another manic Monday

Oh yeah I remember another manic Monday

Comments 3 comments

Good morning. I am not sure where my post is going to go today because I have no idea what I want to say. I have a headache again. I’ve been getting them more and more frequently. Luckily they have been going away with ibuprofen but I’m on medicine everyday for headache/migraines, why am I getting them? They were really bad when I was sick last week but I had one yesterday and now I have one today. I guess…

Read More Read More

Fall has finally come, my MS thanks you

Fall has finally come, my MS thanks you

Comments 3 comments

I think it’s finally official, the fall has finally come to New York. For all those who don’t believe in global warming him, it was 77° in New York yesterday and it was warm and humid. It was gross. For people with multiple sclerosis, or at least me with multiple sclerosis, it’s the worst weather I can deal with. I wait every year to get through the summer and it just seem like this one never would end. My air…

Read More Read More

When to go into a wheelchair?

When to go into a wheelchair?

Comments 8 comments

There is only one answer to this, when you absolutely have to!!! Stay on your feet as long as you can. Once you’re in a wheelchair full time your legs will weaken making walking more and more difficult. I know this all but here’s my problem, walking is getting more and more difficult for me. I have both good and bad days but let’s say I go to the small grocery store and walk with my rollator, I can walk…

Read More Read More

Can barely walk but still driving

Can barely walk but still driving

Comments 4 comments

I have no idea how but thank god, I can still drive. I don’t drive much and I don’t drive far so when I’m in my car I really enjoy it. Especially on days like today when the sun is shining and I have the sunroof open. I love listening to my music way to loud. I use to love smoking and driving but I quit years ago. My car has brake hold. A wonderful feature that holds the brake…

Read More Read More

The way we were…

The way we were…

Comments 3 comments

I think for anyone that has had a chronic illness for any length of time has sat and remembered what it was like before the illness. Or at least what it was like before it got really bad. We remember when we used to dance, run, or have any  exorbitant amount of energy. We remember when we taught our child maybe to ice skate or ride a bike. Maybe you remember Sunday afternoon hikes up the mountain. All these wonderful…

Read More Read More

My week with a cup half empty

My week with a cup half empty

Comments 0 Comment

Happy Friday to everyone. All is right in the world again. I am awake, although slightly reluctantly. I’m on my couch with a dog on either side of me. My daughter is home for the weekend. I saw her for a total of 10 minutes yesterday, from the train station back to house before she left again. That’s ok, I’ll see her today. I have an aide coming today. I’m going to get some soup cooked and maybe a vegan…

Read More Read More

No, I’m not lucky

No, I’m not lucky

Comments 4 comments

There’s a reason I have an aide for eight hours a day. There’s a reason I don’t work anymore. Sometimes I feel like I’m running a scam, that I should be working or I don’t need an aide eight hours a day. Especially when someone says lucky you. Let me explain something to you and myself, I’m not a lucky girl.  I’m not a lucky girl that I’m on full disability and don’t work. I’m not a lucky girl that…

Read More Read More

Damn fatigue a short blog post

Damn fatigue a short blog post

Comments 0 Comment

I’ve been so tired lately. I hate this feeling. I have been napping every afternoon for a few months now. Not always a long nap but at some point my eyes just have to close. The last few weeks have been really rough. I’m just wiped out doing anything. I had therapy today. I just am spent. I really want to crawl back into my bed and stay there for the day but I won’t. I’ve blogged everyday since I…

Read More Read More

Is it an MS symptom or not?

Is it an MS symptom or not?

Comments 1 comment

If you’ve suffered through this disease for any amount of time, something strange will happen in your body and you’ll ask yourself this question. It’s normal. Eventually the answer stops making you crazy and you just deal with it. However, I believe that the longer you have the disease the more you know what is or isn’t the disease. Even better you know what symptom is making other problems of yours worse. Like today, I realized my shoulder tendonitis has…

Read More Read More

Verified by MonsterInsights