We arrived at Monday once again. I feel like I am on a fast track through these days, weeks, months and years. That is saying something considering most of my days are spent in front of the TV. I am far from highly stimulated most days. Yet the days are going fast. I know I’ve said this many times before. I’m sorry I’m repeating myself. I just find it amazing sometimes. I got to spend a few hours with my…
I’m doing better with the spasticity. I was never a person who thought Baclofen really did anything. I’ve taken 10mg a day, as preventative, for as long as I can remember. Well increasing it to 20mg twice a day has definitely did something. The constant dull ache I’ve had in my lower back has almost completely subsided. I am able to bend my legs to get up more often than not now. I’m not cured but doing much better. I…
Well another episode started off an otherwise lovely evening. My mom and stepdad were coming over for dinner and to watch Yellowstone. We missed last week’s episode so we were in for a double feature. It was just about 4:00 when I hung up with my mother. I was getting up to feed my puppies. I didn’t transfer to my wheelchair well. I ended up sliding down to the floor. When I got up I would have taken the increase…
Well yesterday was a visit to my neurologist. I want to thank my pseudo uncle for driving my van. I am not so comfortable driving on the parkways anymore. My first words to my neurologist were “did you miss me?” I have been coming to see him for almost 24 years. I just turned 50, that is almost 1/2 my life. He has been on my multiple sclerosis journey from day 1. He was the neurologist that told me I…
So far it’s been an interesting week. I finally called my doctor about the spasticity. https://multipleexperiences.org/2021/10/29/spasticity/. However if you check out the blog post’s comments you’ll find a really good suggestion from Tom. Even though I take 10mg of Baclofen daily, I personally never felt like it was a big help for spasticity. I take it daily to keep it in my system. When I do have spells of spasticity, I have the prescription to take up to 3-10mg tablets…
Good morning. Hopefully it actually is good. It is finally fall weather outside. A lovely crisp 54 degrees. I still have a window open next to me. I am sure my aide thinks I’m insane. I love the chilly air especially when I workout. Eventually I shut them. I’m surprised with this cooler air my spasticity is still really bad in my legs. It can be very difficult to get my leg to bend. It affects my right leg more…
I’m so glad this week is over. This week was tough. Everything that could go wrong went wrong, but dumb shit. Like knocking things over, my Apple Watch not working for a day, my Bionic Gym stopped working, the new coffee pot was delayed in delivery, and forgetting things I had planned. It was just one thing after another everyday this week. I’m exhausted. I have had a migraine for 3 days now and although today is much quieter than…
My spasms have been extremely annoying lately. I have a few different types and it depends what it hitting when. My back has probably been the most frequent. It starts with this warm feeling that spreads across my back and reaches from left to right. It continues to my right hand where it paralyzed it for a second. Then I have the one in right hamstring. This one you can feel building up. It’s like you welcome the spasm when…
I’m not sleeping well which is unusual for me. Sleeping has never been my problem. I can sleep all day and night normally other than getting up for bathroom breaks. Once in a while I deal with spasticity issues that plague my sleep. That can last for a night to a week to a month but that is sporadic and the medications I take at night normally do a good job preventing those episodes. I take baclofen, neurontin and flexeril…
I woke this morning with my twitches. It started up by my pelvic/hip area on the left side getting this feeling of an electric pulse. That pulse then traveled down my leg causing instant paralysis and flexing all the way to my toe. Then it stopped and released until the next pulse hit. They came every 10 minutes until I finally got up because sleeping wasn’t happening anymore. I take all my medicine at night so I can stop any…
