These days come fast, don’t they? I have to say, it’s been very busy for me. Good busy buying stuff for my new condo, but busy. I’m exhausted and it’s Monday I didn’t even do anything. I was out both days this weekend shopping. I had buy new locks the door. May not sound like such a big deal, but I have multiple sclerosis and it’s getting worse. I fumble a lot with keys and sometimes the dexterity in my…
This blog was inspired by another MS blogger, who like me, has had this disease along time. Her positive spirit is always an inspiration. https://trippingthroughtreacle.com/2017/11/28/accept-adapt-succeed/ It wasn’t one time, it’s been many times. The first was the day I got my diagnosis. I didn’t understand what MS was. There wasn’t an internet yet I could search. I had to look it up in an old set of encyclopedias that were in my home. It had maybe two paragraphs in the…
What’s your worst and MS symptom, besides fatigue ? At first I would’ve always answered the numbness, but eventually you get used to it. Not used to it in the sense that it feels normal, use to it in the sense that this is how it is. My hands and fingers are so numb all the time. I’ve lost all tactile feeling and sometimes can’t tell the difference between an item that is wet or dry, cotton or silk and…
My birthday is in 2 days. November 22. I haven’t paid much attention to it with everything else going on, could you blame me? It’s tough to go through and pack 11 years worth of stuff. It’s tougher when you have MS. I could hire people to pack and move for me but that’s a lot of money, so I’ve been doing a little each day with my aide. I have only so much stamina in me each day so…
When I was at my doctor the other day, I was explaining some of my symptoms. I thought I possibly my optic neuritis was acting up. My very first MS symptoms was optic neuritis. It was in my right eye and it was like a huge sunspot in my field of vision. I had it once very mildly in my left eye, same thing but much less intense. I believe I had one other issue in my right eye over the…
I received a comment yesterday, on an older blog, about my Ocrevus infusion. What I found interesting is she’s had multiple sclerosis for 36 years and she’s first going on a disease modifying therapy. First of all I have to say, 36 years within any DMT, that is amazing!!! I know other people like that or that have stopped taking any of the disease modifying therapy drugs for a variety of reasons. I never had that option. My multiple sclerosis…
Going to the neurologist are usually a bittersweet day. I really like my neurologist in the city, she is a wonderful doctor. I honestly couldn’t ask for more compassionate, caring and understanding for MS. That being said, there’s limits to what could be done for me. Since seeing her regularly I’m on my third MS drug that I started back in September, which is Ocrevus. I can say that I was on Rituxan prior to this and the changes only…
I’m very chipper this morning. I slept in. Both dogs let me sleep until 8:00. However, most importantly, my leg strength, or I should say what normal strength they have, came back. I stopped using the bathroom a million times throughout the night and I haven’t had any accidents since Thursday. The chances that I really did have a UTI and needed the antibiotics are pretty good. The doctor even said in two days you’ll know because your MS symptoms…
I had a rough night on Thursday. I was up every hour to use the bathroom. I’d wake up and not be able to make the six steps to my bathroom before the accident occurred. I had 4 accidents that night. So happy I have a washer and dryer in my apartment. When I got up in the morning I took my dogs downstairs to their dog run. I like to try to walk the steps at least once a…
This is definitely been a new one for me. I probably have been on and off weight watchers since I’ve been about 10. There’s nothing I really don’t know about dieting, especially the weight watchers plans. However this one actually requires a lot of thought. The current plan, called smart points, is a protein-based plan. Meaning, lean meats are the lowest points. Carbohydrates, even the whole-grain complex ones, a much higher points. The vegan diet, obviously, does not eat any meats….
