I did well yesterday My words are my actions. I managed to use the walker until after 2pm. I completed 3 sets of 10 squats but I can admit I pulled myself up on the last few. I was done!!! I’m happy to say that I recovered and had strength to get myself up into my bed without assistance and without lowering the bed to the flat position. I was proud of myself. My daughter comes into my room every…
I went through my blog posts because I couldn’t remember how many times I’ve done Rituxan. I made the switch from Ocrevus back to Rituxan for the March 2019 infusion. This is my 3rd time. I was on Rituxan at an earlier time but was forced to change when Ocrevus came out. My insurance company, at the time, would not authorize Rituxan because it was not approved for multiple sclerosis. I than changed insurance companies once again and asked to…
22 years ago started my second multiple sclerosis relapse that lead to my diagnosis five days later. My first was optic neuritis but by itself had no name. It was 6 months later on Valentine’s Day weekend when I moved into my new house and my left side started to go numb. What started in my foot quickly traveled through my entire left side up to my face. I had difficulty walking, muscle atrophy and numbness that would never fully…
Back to feeling rundown again. Spent yesterday morning in bed with a migraine. Migraine is gone but I’m still exhausted. I went into bed before 9pm yesterday and slept straight through until 4:30am. That is a record. I went back to sleep and woke up at 8:44. I had to take my car in first thing this morning otherwise I might have spent another morning in bed. This is a rough feeling as anyone with multiple sclerosis can tell you….
I have to say things in my family have been sad. Bad news received about a loved ones health has hit everyone hard. It puts having multiple sclerosis in its respected place. A place that has always helped me deal with my disease on a more positive level. I’m here!!! I didn’t receive a death sentence when I was diagnosed with multiple sclerosis. My disease could be difficult but I could still live a very rewarding life. I’m coming up…
It happened again, I ended up on the floor and couldn’t get up. However how it happened was slightly comical. I ran myself over with the wheelchair. My sweatshirt got caught on the control as I was making my transfer to my chair. I got knocked over with my arm still attached to the chair. If it was on video, trust me we’d all have a laugh. This is why they always tell you to shut off the wheelchair when…
Friday is here, another quick week. I have plans this evening which will mean I will be in recovery mode all weekend. It doesn’t take much for me to tire out although this wasn’t a terrible week considering all I did. I was out everyday doing activities. That is really big for me. This included my first day back into occupational therapy Dog tired occupational therapy hazard. I was exhausted after that but I was still out for game day…
Question, do you snap at people when you’ve hit your limit? When all my energy is gone and I’m completely exhausted, I’m known to loose my patience. My fuse is short and I can snap easily. My daughter knows this all to well. It is just like my brain can’t handle anything else in that given moment and all my positivity and mental reasoning goes out the door. I wouldn’t say it happens often anymore but it does happen. I…
Occupational therapy kicked my ass today. I knew my first day back would be rough but wow, that was super duper tough. He started with these tiny little beads I had to put onto a shape. He let me do this with my hands. How nice of him. I had a star shape. This consumed the first 30 minutes of therapy. Trying to put those teeny tiny beads on the teeny tiny holes with my left hand. I was only…
