You know you didn’t sleep well when it’s 8:30 in the morning and your Apple Watch already has 6 hours of standing. I wasn’t feeling good this weekend, maybe the start of a cold. I’m not sneezing but I feel congested especially in my chest. I’ve once again resorted to my oregano oil and breath oils. I feel slightly better today but a good nights sleep would have certainly helped. That did not happen. Instead I was up every two…
Not one of my better nights sleeping. I think I was up most of the night. Everything hurts. I hate that feeling. My headache isn’t helping either. I woke up sneezing so I immediately guzzled down some oregano oil. I just feel blah. I worked out and even that didn’t help. Usually bringing on a sweat helps a little but not today. I was disappointed in my heart rate and felt it didn’t register accurately. That in turn made me…
Is summer over yet? I’m ready to put on my oversized sweatshirt. It doesn’t matter that I stay indoors with AC the humidity penetrates to my bones. I know this question was asked by Steve over at MSich Chronicles http://msichchronicles.blog/2020/07/29/evansville-heat/, but how do people with MS live in hot, humid places? I’m in countdown mode until I can officially say its Fall. Right around the time of my next Rituxan infusion. For any new readers, I switched back to Rituxan…
This was a weekend of great ideas and completely mindless moments. I thought I’d share them all for you: I pulled a muscle in my butt. In my stronger leg. I was stretching in a simple position. As soon as I pulled the leg up, I felt it. No big deal except, this is normally the favored leg to push myself up to stand with. That move is freaking painful. However, I kind of don’t have a choice. It has…
After three years, my aid is moving on. She’s changing her hours to work 12 hour shifts each day during the weekend. This way she can make relatively the same hours in less days and be home with her son. With all the uncertainty of the schools new operating hours, who could blame her.  I witnessed firsthand what it was like when she had a homeschool her son. It was hard for every parent but exceptionally hard for someone…
Well my appointment with my OT wheelchair evaluators was good and bad. I was having some issues transferring into my new chair. Having issues with my new wheelchair. The bad was the chair doesn’t get an lower. My therapist explained that I need to work on the ways to make transfers work and keep them safe. They definitely recommend training with a sliding board and with a one on one trainer for transfers. Since I won’t be cleared by my…
Good morning to all. I just sat down from my morning exercise. My body certainly feels it but my heart rate didn’t reflex the same results. I have not taken one day off since I started the MS gym program. I just changed my workouts and incorporated the gym too. The last time I didn’t close my exercise circle (the green circle) was back on June 25th. When I complete this week, I will have completed the program I signed…
There are so many good things about this wheelchair but unfortunately there are a few bad things. I have been consistently in the new wheelchair now for a couple of weeks. I waited to use it for a couple of weeks after I got it. Between breaking the mirror and Minx being so tiny, I couldn’t do learning a new wheelchair and avoiding him at the same time.New and old. In using the chair I realized some major issues. The…
I work so hard!!! I workout everyday. I try to incorporate weights to build my muscles and my strength. I try to eat right. I take a shitload of pills to offset all my MS symptoms. I spend more money than I can afford on good vitamins that I take daily. For what??? It gets hot and my body forgets it has any muscles. I suffer fatigue and I can’t do anything on my own. I once again ended up…
It was hot, humid and hazy yesterday in NY. I stayed in the AC the entire day. It didn’t matter, the heat and humidity still found its way into my bones. I had a very tough day. I normally do a 45 minute workout on Sundays but only finished 30. I had to use the bathroom. That was an unsuccessful event. Bad footing caused me to slide down to the floor. Once I was there, I knew I was in…
