After three years, my aid is moving on. She’s changing her hours to work 12 hour shifts each day during the weekend. This way she can make relatively the same hours in less days and be home with her son. With all the uncertainty of the schools new operating hours, who could blame her.  I witnessed firsthand what it was like when she had a homeschool her son. It was hard for every parent but exceptionally hard for someone…
Well my appointment with my OT wheelchair evaluators was good and bad. I was having some issues transferring into my new chair. Having issues with my new wheelchair. The bad was the chair doesn’t get an lower. My therapist explained that I need to work on the ways to make transfers work and keep them safe. They definitely recommend training with a sliding board and with a one on one trainer for transfers. Since I won’t be cleared by my…
Good morning to all. I just sat down from my morning exercise. My body certainly feels it but my heart rate didn’t reflex the same results. I have not taken one day off since I started the MS gym program. I just changed my workouts and incorporated the gym too. The last time I didn’t close my exercise circle (the green circle) was back on June 25th. When I complete this week, I will have completed the program I signed…
There are so many good things about this wheelchair but unfortunately there are a few bad things. I have been consistently in the new wheelchair now for a couple of weeks. I waited to use it for a couple of weeks after I got it. Between breaking the mirror and Minx being so tiny, I couldn’t do learning a new wheelchair and avoiding him at the same time.New and old. In using the chair I realized some major issues. The…
I work so hard!!! I workout everyday. I try to incorporate weights to build my muscles and my strength. I try to eat right. I take a shitload of pills to offset all my MS symptoms. I spend more money than I can afford on good vitamins that I take daily. For what??? It gets hot and my body forgets it has any muscles. I suffer fatigue and I can’t do anything on my own. I once again ended up…
It was hot, humid and hazy yesterday in NY. I stayed in the AC the entire day. It didn’t matter, the heat and humidity still found its way into my bones. I had a very tough day. I normally do a 45 minute workout on Sundays but only finished 30. I had to use the bathroom. That was an unsuccessful event. Bad footing caused me to slide down to the floor. Once I was there, I knew I was in…
Good morning. It is a Grey Saturday morning here. Actually it’s a white Saturday morning.  If you look closely you can see the water. It’s 8:00 am and I’ve already worked out. I can’t say enough good things about the MS gym. http://www.themsgym.com/. I just completed week 2 and I already have seen a slight improvement. no one else would notice this improvement, it is extremely minute. This is just one of the things that I noticed from doing…
I was sitting with both of my dogs yesterday, all cuddling on my chair. My Zoey decided to do her typical puppy love and kiss my face. I don’t know if things changed or I just haven’t realized, but where she was kissing, licking, I felt nothing. I felt the pressure of her tongue but I couldn’t feel her tongue. I couldn’t feel the wetness of the kiss. All I felt was that pressure and nothing else. Zoey has a…
I had my sister and brother-in-law over yesterday. Love them ❤️. I was showing off my new wheelchair that I have not been using. Between learning how to maneuver the wheelchair unsuccessfully and Minx being so tiny, I thought it was best to stay with my more familiar hooveround for a while longer. So I put the new chair in the closet temporarily. Minx loved my hoveround although we had a few mishaps. There were a few yelps from him…
So Minx, my adorable puppy, has definitely affected my sleep. Yet my body has been more run down from the changes I made to my workouts. I have been doing various workouts for a minimum of 5 days a week for a long time. As my disability worsened, my workouts were modified but never stopped. I’ve modified to a chair quite successfully. I can get my heart rate up over 130 on some chair workouts. All good but muscle burns…
