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Tag: difficulties with ms

Monday Ramblings from multiple experiences

Monday Ramblings from multiple experiences

It’s usually my morning meditation that I decide what I want to blog about. This morning I fell back asleep during my meditation and I never got an idea of what I wanted to say. Right now I’m just staring at the water, hoping something will come to me. When your blog every day, I have to admit, some of my blogs become pointless. I have a feeling this is going to be one of them. I can tell you…

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Difficulty with the extreme cold and MS

Difficulty with the extreme cold and MS

Last week it in New York it was in the single digits before you add it in the wind factor. At that point it was the negative digits. I went out to eat at a restaurant with my family. The restaurant had open windows on all sides and even though the heat was turned up, it just couldn’t compete with the cold outside. The restaurant was freezing. We were there with cousins we haven’t seen in a while so it…

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Despite my MS, I am very happy

Despite my MS, I am very happy

I’ve lived in my condo officially two weeks today. I know I sound like a broken record and I apologize, but I just am so happy. I’m always blogging about all the bad things, living with multiple sclerosis and how tough it is, it’s just so nice to recognize the good things. Every day I say to my mom, I love this place thank you so much. I probably could say that every day and it would never be enough….

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Another one of those days, weeks, months with Multiple Sclerosis

Another one of those days, weeks, months with Multiple Sclerosis

Beautiful sunny day and I wake up with a headache. You know when you just haven’t felt right? That’s how I’ve been lately. I know, I know I have multiple sclerosis. Yes, that’s very true and the chances of it being just something with my multiple sclerosis is extremely high. However I just haven’t felt right. I’m not really sure what’s up. My doctor called with my blood work and again, everything is fine. I definitely don’t have Cushing’s, diabetes…

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When the simple isn’t so simple

When the simple isn’t so simple

I’m covered in ink. I have a new printer and I was finally putting it together yesterday. It has six different ink cartridges. As I was opening the ink cartridges, because my hands are all wacky I guess I was holding them wrong so the ink just kept getting on my hands. Thus, I’m covered with ink. I made a mistake with two of the cartridges and didn’t put them in right. Now I was left with the task of…

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Biotin, dating, Ocrevus and me

Biotin, dating, Ocrevus and me

It’s been a strange couple of days. I’m finally able to start taking my high dose biotin again. If you read any of my other threads on biotin, and there are many, what mostly showed in the biotin is that my walking speed increased by seven seconds. This is according to my neurological test by my doctor. However I’ve stated, and I still stand by, that biotin helped do more. Besides noticing more weakness in my legs and hip area,…

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I’m not losing weight because I have MS

I’m not losing weight because I have MS

This is what the doctor firmly believes. I’ve had to slow down because the MS has disabled me and I physically can’t do much. Definitely not what I wanted to hear. However I can’t say that it’s definitely a false thought. He looked at my records over the past two years and I’ve gained a total of 6 pounds. Again you might think oh my God big deal you gained 6 pounds in two years, What’s the big deal? The…

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MS without the high dose Biotin

MS without the high dose Biotin

I haven’t taken a high dose biotin in about a 2 1/2 weeks. I have to admit there is a change. The only thing with MS, you just don’t know what the actual culprit is. I’ve been very weak in both my hip area and my thigh area. That’s causing a greater difficulty than normal getting up if I’m down on the floor. I’ve also had major fatigue again. Where I was sitting down and my eyes start closing whether…

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Happy New Year-Welcome 2018

Happy New Year-Welcome 2018

Wow, that was fast year. Happy new year to everyone, have to start with that. I hope everybody had a safe and wonderful evening wherever you were. I have to be honest, I was asleep before midnight. I think this is the first time I fell asleep on New Year’s before midnight. I was always so happy to be done with the current year and hopeful that the next year would be better that I guess I had to see…

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Relapsing Remitting and Secondary Progressive MS, a combination of both

Relapsing Remitting and Secondary Progressive MS, a combination of both

It’s 20 years that I’ve dealt with my multiple sclerosis. When I first started doing research on my own illness, it was stated that most people go into the second stage of the disease after about 10 years. The second stage of the disease being secondary progressive MS. Most people start off in relapsing remitting and, at the time, it was said that 80 percent of people in this stage will go into secondary progressive around that 10 year mark….

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