So I was at my hairdresser yesterday, an appointment I never miss. I was alone with my van and wasn’t the least bit concerned. I knew I needed my walker not my scooter to go in so my aid and I had that in my car before I went. I was even prepared and got my other walker out of storage so I didn’t have to worry about bringing it back into my condo. I meet my mom at the…
I received a call early in the morning that my aid’s son was sick she wouldn’t be making it to me for the day. However, yesterday was mahjong and I wanted to go. This is why I got a handicap van for my independence, right? So I decided I was going to go. I was more worried about getting out of my house without my dogs running out the door on me. I decided to be very proactive. My word…
I just woke up feeling good today. Not so much MS good but mentally good. I should have said happy because that’s what it was just happy feelings. I always wake up and pet the dogs before getting out of bed. It is my morning ritual and both dogs know it. Marshy, who sleeps under the covers, emerges when he hears my voice and comes nuzzling next to me and immediately gives me his tummy to scratch. Zoey, who is…
Well the 8 month journey to purchase my van was really worth the experience I had yesterday. To be able to press a button that opens a door, sends down a ramp that I can just wheel myself into is more liberating than I even expected. What makes this even better is I am finally able to use my main wheelchair which is a Hoveround MP5 . Using the travel scooter for many years was convenient. It broke down and…
I got a call from the finance manager yesterday going over a couple of details and she said they were delivering the van this Wednesday, like the day after today. WHAT??? They haven’t received any payments from my grants and we aren’t planning on laying that money out. “They leave it on their accounts receivable side, it’s not a problem”. As wonderful as this is for me, other than the grant from Nova, they didn’t even ask me for me…
You think this would be easy, but it really isn’t. I have seen now a place the converts Honda Pilots which I love but they aren’t located in New York. I even found handicap accessible trucks That’s crazy. Look at that!!! Then I found smaller cars with hatchbacks that would have been perfect for me before this but who knew. There are tons of cars out there plus tons of adaptive equipment that can be put into a vehicle to…
I’m Jamie. I was diagnosed with Multiple Sclerosis in 1998. I have been lucky that I’ve been able to be on my feet for many years but my time to be in the wheelchair is here. I have been a single mom since my daughter was 7. She was born with a progressive hearing loss. She received bilateral cochlear implants. I dedicated most of my years to getting her the help she needed in school both academically and socially. My…
