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Tag: living with MS

Bladder problems and Multiple Sclerosis

Bladder problems and Multiple Sclerosis

Could I honestly have MS for 18 years and never discuss a symptom that will eventually effect 80% of people with MS. Let’s start with basic urology lessons of what a healthy bladder does when functioning correctly. We make urine in our kidneys that travels down two tubes called ureters to the bladder, an elastic sac that holds urine. When all is good and working right as the urine is stored the sac expands. When it expands nerves in the…

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MS symptom not in the textbook

MS symptom not in the textbook

It’s not listed in the MS symptom book but I have issues regulating my body temperature. It happens more often then I care to admit to and usually in the morning when I go out for either brunch or breakfast. I get coffee nothing unusual and eat and it causes my body to sweat. Sometimes is only a mild thing other times I’m in a full blown sweat where my hair line is wet my clothes are wet and you’d…

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How about empathy or sympathy from our government or insurance?

How about empathy or sympathy from our government or insurance?

My last day of work was January 21, 2016. That was almost 9 months ago and I still follow a Monday through Friday week. Probably because my daughter is still in school and I wake up with her every morning so come Saturday and Sunday I can sleep later.   I can’t imagine working. I’m so tired on certain days from doing so little the idea of what I used to do blows me away. how I ever did it? This…

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Yesterdays blog was a complete crock of sh@t

Yesterdays blog was a complete crock of sh@t

At the time I probably meant when I said all that positivity stuff but it didn’t take long for it to go right out the window. I do try mostly to follow a very positive lifestyle but sometimes the MS just gets to me I get overwhelmed and things go downhill fast.  My day didn’t really start good even before I wrote that post. During my exercise I wasn’t in a good mood I wasn’t happy with my program I…

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MS another day in the life

MS another day in the life

I’m happy to report after putting myself to bed at 9pm and sleeping until 9am I’m feeling better. I must say I hit my overwhelmed state yesterday evening. I’m off my routine completely.  I haven’t meditated in four days, I haven’t really worked my course of miracles workbook in two days and yesterday I skipped an exercise day which I haven’t done in months. Let me tell you it makes a difference. School starts again tomorrow for my daughter and…

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Dating isn’t helping the diet

Dating isn’t helping the diet

Well good morning self sabotage, how you doing today? Yeah I know it’s all me.  Making bad choices and then throwing my hands up.  I’ve been writing this blog for three months you think that finally something with sink in, NAH.   I have finally excepted that the chance of me losing the last 20 pounds is pretty slim. Would it be better for me with MS? Of course but I think there comes a point where your body just…

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I believe in…

I believe in…

I was never very religious growing up.   My thoughts on Jesus was the that an amazing lived a very long time ago, a preacher who touched many many people. As far as him coming back and being resurrected I believed his spirit did  because I certainly believe that there is something after death. As far as Moses parting the Red Sea, again I believed another great man saved people from hardship somehow got them to another safe land but…

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A parent first

A parent first

ive told the story in past posts about my parents and the pain my MS has caused them. To watch your child hurt and suffer when you stand by helpless is the worst feeling for a parent. I know my disease has repeatedly broken my parents (all 4 of them) hearts at various times through the years. I’ve had challenges with my daughter too. She was born with a progressive hearing loss. It is called EVAS, enlarged vestibular aqueduct syndrome. Her…

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Dating with multiple sclerosis part 2

Dating with multiple sclerosis part 2

Did I ever make a post for part one? Not even sure. But I know I’ve had a lot of posts about dating and here’s another one. I’m going on a date today actually in a couple hours but this one I’m looking forward to.  This is a gentleman from match.com. He actually reminds me of a good friend of mine that I met on match.com probably nine years ago already. We went on one date to a Paul McCartney…

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