I’ve said many times that I start to write my blog with one idea and it goes a completely different way. Sometimes the blog writes itself. This is what happened yesterday Summer heat hibernation and my own multiple sclerosis realization. I certainly wasn’t planning on addressing the idea of more aid hours. I’ve pushed back on this, against my family’s concerns, because I need some alone time. It’s probably why I never have a problem being home. I’m with someone…
The quarantine is starting to lift yet this is the weather I start my hibernation. It’s starting to warm up and that means trouble for me and multiple sclerosis. Not just me, many of us. Between 60% and 80% of people with MS find that heat can cause their symptoms to worsen. This might involve a build up of fatigue, blurred vision, loss of balance or a worsening of cognitive symptoms such as concentration or memory. https://www.mstrust.org.uk/a-z/temperaturesensitivity I missed all my good months to…
I had another rough night. This time I was alone. My daughter has been home for two months and the one night she’s out I really needed her. Unfortunately in my exhausted state, I fell. Not only did I fall but I was in a very bad spot. I was now exhausted and helpless. Not a good place to be. I spent a lot of time and energy maneuvering myself into a position of hope. Hope that I could possibly…
This is my recent purchase. It is designed for elderly and people with little mobility. It works by moving you feet in a walking like motion. You can see how it looks from the top of my legs in this video. My legs are definitely moving. They are not going super fast but they are getting movement. I did this for an hour yesterday while I sat and watched TV. I had to stop because the truth was my legs…
When you live with a chronic illness I think you start to hate that question. People ask it all the time but they really don’t want the actual answer. Trust me, we very rarely actually respond with the truth. My go to answer is I’m doing ok. I can’t say good anymore because that is just too much of a stretch. I just answer with a vague I’m doing ok and change the subject, how are you doing? What is…
I have said so many times that I really didn’t know what I was doing when I started my blog. Guess what, I still don’t. Other than the basic stuff on WordPress, I’m pretty much clueless. I just like to write. My English teacher’s would be shocked. I like to share. I like to tell about my experiences and hope that they help someone else. I never expected the help having this blog would be for me. The support I’ve…
Not everybody knows this about me, but I had cats before I had a dog. My very first apartment with my soon to be husband, then ex-husband LOL, didn’t allow dogs. I was dying for a pet. One of my employees had a cat that had a litter of kittens and I got my first cat. We named her tipsy because for a cat she wasn’t quite so graceful. She would be walking across the back of the couch and…
I haven’t talked about my MS in so long. It hasn’t been too bad, thankfully. I did end up on the floor after I worked out in the evening. Totally Rocked This I had this great work out but it did make me extremely tired and my recovery wasn’t quite on point. So transferring into my wheelchair didn’t go so well. I didn’t panic, or cry. It took me a little bit but I eventually got myself up and I…
Sometimes I even shock myself. Lagging all day. The only thing I ate was plain matzo with some grape jelly. I close my eyes quite a few times but never slept. yet everybody leaves my house, it’s all quiet, and I put on my workout gloves and work out. Not only did I work out but I had a great workout. That just makes me so happy. Do you have an average heart rate of 126, I mean that rocks….
I had a rough night. I had a very upset stomach. It’s 10:00 in the morning and I already completed 8/12 standing. Every part of my body aches but my stomach feels better. I haven’t slept and wasn’t able to fall back asleep. I was consoled the whole time by my little Zoey. Cuddled up next to me ❤️❤️. MS doesn’t help without sleep. I will drag myself through the day. Good thing I have nowhere to go still. I…
