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Tag: living with MS

Pincushion Arms and Infusion on Horizon

Pincushion Arms and Infusion on Horizon

I’m sneezing. My first cold of the year. I have been taking my oregano oil for a few days. It has probably helped but it hasn’t stopped the cold like it has in the past. I think things are just not affecting me the same since my whole pneumonia debacle. Oregano oil use to knock out anything as soon as I felt the twinge. Now I feel like it doesn’t do the trick. I’m not use to actually feeling run…

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Gastrocolic Reflux

Gastrocolic Reflux

I’m waiting out a F1 rain delay so I decided to write. Rain always makes a race so much more interesting. My favorite driver, Fernando Alonso, a veteran and oldest F1 racer loves the rain. He knows how to drive a F1 car in those weather conditions. He isn’t scared taking the corners at a high speed as some of the newer drivers still are tentative. Plus this is a night race in a street circuit. That means close walls….

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MultipleSclerosis.net Latest on MS Clinical Trial

MultipleSclerosis.net Latest on MS Clinical Trial

This article was from multiplesclerosis.net. I haven’t posted much on research lately. Probably because I am at a point where most drugs in the horizon won’t help. However, today Facebook has been showing ads for multiple sclerosis drugs that ARE NOT drugs approved for MS or covered by insurance. They are just ads from companies trying to target a market for the chronic disease. I don’t mind the ads when it’s nail gels or low carb keto snacks. By all…

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Only Wednesday..,

Only Wednesday..,

I got a Covid booster and flu shot on Saturday. I was down for the count for almost 2 days. I’m doing better now. I thankfully made the decision to cancel occupational therapy for the morning. I was feeling better but I think I still needed the day to recoup. I didn’t even exercise, you know that’s saying a lot for me. As I laid in bed somewhat sleeping Monday morning, my new aide once again showed up an hour…

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Waiting on Gastric Diagnosis

Waiting on Gastric Diagnosis

I have a new day time aide. It’s been a little rough with some of the aides I’ve been sent. I hate being that person that complains but some of these people were just useless. I can put up with a lot. If I feel unsafe with someone I usually can’t get through that. Some of these aids had no training. I knew if I stumbled during a transfer I was going down. It became very stressful each day. Each…

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What is multiple sclerosis?

What is multiple sclerosis?

I don’t know how many times I’ve talked to people that had the cure for multiple sclerosis. If it was just about diet and taking vitamins, I promise you, I would be doing that. People mean well. Unfortunately, they read one story and think it works the same way for everyone. If there was a universal cure we’d know. I think that diet and vitamin can make a difference in the early stages of multiple sclerosis. The healthier your body…

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My Full Time Job

My Full Time Job

Another week begins…truthfully they all blend these days so I shouldn’t say a word. It isn’t like I’m starting a work week. The one thing Monday brings is the list of phone calls I need to make. I find it amazing that I always have to take care of something. It is either insurance stuff, doctor appointments or calling people that didn’t return my call from the following week. It might not pay but somedays it’s a full time job….

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Voluntary Best Friends

Voluntary Best Friends

I am still dealing with all the little things, but I’m not as down as I was writing Monday’s blog. I can report that there is still areas I’m making improvements. Tuesday I was actually able to get up from sitting on the toilet seat. It was a “dry run” exercise with my occupational therapist. I was actually able to get up twice. I didn’t even use that seat that goes over the bowl to raise you up. I was…

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My brother Howard’s 13th year for Bike MS

My brother Howard’s 13th year for Bike MS

Every year I put this on my blog. Every year he does this amazing fundraising event in my name. This is a MS fundraiser that I wouldn’t be able to participate in based on the level of my disability. I haven’t been able to ride a bike in many years. That is what is amazing about these fundraisers, most of the time the people participating don’t have MS. I thank everyone who donates. However, I truly thank the people out…

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Welcome to my Online Therapy Group

Welcome to my Online Therapy Group

I have a question for my multiple sclerosis readers, how often do you come across other MSers on the same path as you? I have met many people with similar symptoms. I talk to many who were even diagnosed somewhat similarly. I don’t speak to many who have had the same progression path as me. There are always the similarities in the symptoms we face at certain points. The symptoms of MS are somewhat common as the disease progresses, at…

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