Yesterday was a fun day. My mahjong friends came by me and we played mahjong all afternoon. My mom came later to teach us how to form a hand faster. It was just a nice day. We played in my condo meeting room. It is this huge room with a kitchen, one large bookshelf filled with books, tons of chairs and one long table because the only time this room is used is for condo meetings twice a year. It…
I woke this morning with my twitches. It started up by my pelvic/hip area on the left side getting this feeling of an electric pulse. That pulse then traveled down my leg causing instant paralysis and flexing all the way to my toe. Then it stopped and released until the next pulse hit. They came every 10 minutes until I finally got up because sleeping wasn’t happening anymore. I take all my medicine at night so I can stop any…
Do you get those weird symptoms from MS? I’ve blogged about them before but sometimes they come out of nowhere and they are so annoying. Today it is like my bra is too tight and it’s cutting into the left side under my breast. Wouldn’t be so wacky if it didn’t start while I was in bed not wearing a bra!!!! Only on the left side too never the right. I’ve had this crazy feeling before actually many times and…
Today is the first day I’m going out in a week. Between my stomach issues and the excessive heat I’ve been home bound. I can’t even complain about it because I felt terrible for a good portion of those days. I was happy to have my family support and the unconditional love of my dogs. My weight shot back up, everything I lost over the last month is back plus a pound or two. I spoke to both neurologists and…
I had a visual appointment with my MS specialist yesterday. She is the one who prescribes and advises on my main MS drug therapy. Currently I am on Rituxan. The question of my disability getting worse really isn’t a question, it is a fact. We’ve discussed other drugs but unfortunately the one she was waiting for is still a few years off. That’s the Ibudilast. She did yesterday for the first time mention Mavenclad. In all honesty I didn’t know…
So after my gastroenterologist visit I was given stuff to do to “clean me out” Gastroenterologist visit. This is the same kind of prep for a colonoscopy. I had to take magnesium citrate and I was so nervous about having an accident. I took it and waited, and waited, and waited. This is supposed to work within 30 minutes to 3 hours. Eight hours later nothing. Finally the following morning I went a little, far from the “cleaned out” goal….
I have to say this was a really nice office. The whole staff was super nice but the doctor was extremely nice. He spent a lot of time with me discussing the issues with constipation and multiple sclerosis. What a nice man he was. After a lengthy conversation together, the diagnosis was chronic constipation. Nothing shocking there, I knew that as did my referring neurologist. It was what should we do about it that needed an answer. He asked me…
Provigil or it’s generic Modafinil reduces extreme sleepiness due to narcolepsy and other sleep disorders, such as periods of stopped breathing during sleep (obstructive sleep apnea). It is also used to help you stay awake during work hours if you have a work schedule that keeps you from having a normal sleeproutine (shift work sleep disorder) https://www.webmd.com/drugs/2/drug-16964/provigil-oral/details I’ve taken this drug for over 10 of my 21 years having MS. We decided to add it back in again recently because I’ve been suffering from fatigue Neurologist appointment complete….
I feel a little down since my neurologist appointment the other day. I haven’t shaken it off. I’m not down about having MS, I’m down about MS causing me to gain weight. Between the medicine, my age and lack of physical ability I can’t control my weight and I am very sad. I spent my entire life battling my weight. I was always up and down on the scale since I was a teenager. I’ve read about and tried every…
I made the decision to hide my profile for the few summer months. I get too overheated being out and about in the summer heat. It just isn’t the right time for me. I realized a few things in the short time I was active both about myself and others. There are people out there that could have interest in someone in a wheelchair. The interest varies I’m sure but I did get contacted by many people with my main…
