I received word this morning: I am pleased to inform you that your application has been selected by the committee for funding. Please see the attached letter for details and instructions for fulfillment of this grant. I was approved for the last grant for my handicap van. This was truly the difference between the van being still very difficult to pay for each month and being affordable. I have never been so nervous opening an email. I never doubted that…
It’s Valentine’s Day here which always marked 3 things for me: The lover’s or lack of one Holiday The weekend I moved into my first house with ex-husband The start of a major MS attack that lead to my diagnosis less than a week later Today marks 21 years ago that I was diagnosed with MS. Crazy!!! Almost half of my life I’ve spent with MS. It is hard to remember the times without the disease. Maybe that’s why I…
Wasn’t my finest dexterity day. My fine motor skills weren’t so fine today. I haven’t been to occupational therapy in a few weeks and I think it showed. It was rough today. I wanted to take the peg and tweezers and throw them across the room. It looks so harmless in the picture but we don’t use this huge tweezer. We use one of those tiny things you’d use to pluck your eyebrows. On a good day this is extremely…
Today my insurance company is sending in a nurse to do a six month review. This review dictates my aids hours and you just never know what is going to happen. I was changed to this plan back in July of 2018 when I became Medicare eligible. They continued with the same level I was currently receiving. My aids hours are actually covered through my secondary plan which is a Medicaid HMO plan. I have never had a problem with…
Yesterday was an exciting day. My step dad took me to New Jersey to meet with a gentleman from Mobility Works. This was another handicap van dealership. What I liked about them is they had a much bigger selection of used vans. I now realized I had to get a used van so it was important to have choices and options. The company I was communicating with from the beginning just didn’t have that access to that kind of inventory….
I played mahjong all day yesterday and I had a great time. Is this the sign? I had a great time. American mahjong is played with four players using tiles stamped with Chinese symbols. The goal of the game is to be the first, by picking and discarding, to match one’s tiles to a specific hand from the annually distributed scorecard published by the National Mah Jongg League (NMJL) and American Mah-Jongg Association (AMJA).[2] Scoring is done by matching the points assigned to…
I am due in March for my full dose infusion of Ocrevus. A process that has never run smoothly and has caused a lot of aggravation. https://multipleexperiences.org/2018/09/13/no-ocrevus-infusion-today/ https://multipleexperiences.org/2018/09/21/no-ocrevus-infusion-yet/ Those blogs were only my issues with the last time I had the infusion. I had issues every time my infusion was scheduled. Now I’m going back to Rituxan at the full dosage. Rituxan which is technically not approved for MS but I’d prefer to be on for safety reasons. I’ve explained…
Ok warning I’m going graphic here because I need to be honest and there is no other way. I have bladder and bowel control issues. For my bladder I take Toviaz which helps me not have accidents but when I have to go I have a very short window of time to make it to a bathroom. Without this medicine I have NO window of time. My bowels are completely different. I can’t take anything and have no control over…
This week is about being happy in the place you are in today. I wrote a blog this week entitled my life today. https://multipleexperiences.org/2019/01/29/my-life-today/. When I’m writing a blog sometimes I don’t know exactly where my blog is going, the words just flow themselves. This was one of those blogs. I had a comment on the blog from someone that simply said “This blog brought me joy”. My reply was, “me too”. When I was writing the blog about my…
It’s been a while but I’m coming back to my P90X workouts from Tony Horton at Beachbody. https://www.beachbody.com. I have been a fan of Beachbody and their trainers for a long time but my favorite was always the P90X routine. I had these great bowflex adjustable weights These weights were great you could dial them from 5 to 52 pounds each. This was wonderful when I could lift a 20lb press or do squats with 30lbs in each hand, not…
