March is a busy month for me starting right out of the gate. I have plans to see people this morning, this evening, tomorrow and Friday. I love having a social life but it always seems to fall into the same week. I have my long hair appointment this week, Cut and color. I never miss my color but haven’t done a cut in a while. Letting my hair grow out some but it now has no style. No matter…
I wanted to share this morning was a link to the MS gym podcast. https://themsgym.podbean.com/ or for Apple https://podcasts.apple.com/us/podcast/the-ms-gym-podcast/id1368971662. The topic was They have various topics all relating to many obstacles and challenges we face. I highly recommend you check this out. I sometimes wonder if my blog should be a video on YouTube as opposed to the written word. In a video you’d see my real video personality and emotions. I think at some point even writing with Siri…
My infusion scheduled for March 17. I’ve been on many of the disease modifying MS drugs over my 23 year span with the disease. Betaseron still holds the record of 12 years but that also has to do with the drugs that were available when I first got diagnosed. I have been on either Rituxan or Ocrevus since 2016. I group these two drugs together for very specific reasons, they are fundamentally the same. The biggest difference is Rituxan is…
I was at my primary care physician yesterday because I have a cut on my shin that is infected. I had antibiotics in the house and I started to self medicate and it wasn’t really working so I got an appointment. She prescribed a stronger antibiotic and a cream but thankfully it wasn’t cellulitis or any further issue that needed more care. This was my fault. I knew it was infected for a while. My Zoey never left that spot…
I’m doing better today. I slept all day yesterday. I even ordered a pizza because I was too sick to microwave or mix up one of my salads. I was so sick that when I was getting a slice one fell on the floor and I couldn’t even bend to pick it up. I let my dogs eat the pizza. I thought Zoey ate it mostly, however this morning Minx has been sick since he woke up. My poor little…
Here I am in the back of my own van. My stepdad and mom are in the front seat. We are on the way to the Bronx for my 2nd Covid vaccination. My appointment was supposed to be on Thursday but snow is expected for that day. So we are on our way. This time I locked the wheelchair down and put on my wheelchair seatbelt. The backseat of my van is not the easiest place to sit. Between the…
Sure the goal is for me not to end up on the floor but let’s be real, it is going to happen. To be able to get myself up off the floor is a big deal. Especially since not even a week ago I was in the exact same predicament and I couldn’t get up. I had to wait for my aide. Once again on the floor. Not yesterday, I learned from my prior week struggle I was in my…
At the age of 49 I’ve lived almost half my life with the disease. It was the weekend of Valentine’s Day when I was moving into my new home that my left foot started to go numb. Within 4 days it was all the way up the entire side of my body. Within 6 days I was at a neurologist who was asking my mom and I if anyone in my family had MS. Having actually had optic neuritis about…
My week ended on a much brighter note that it began. My comfy chair, which has still been out of order, has now been fixed thanks to my amazing abilities and a $13 Amazon part. I’ve spent countless hours on the phone with Bob’s furniture realizing they had no idea what part I was actually talking about. I finally got so frustrated and got a supervisor who had a clue. The part that I was trying to get, that I…
Well unfortunately I had a tough morning. It seems my stomach is still having issues. I had to shower upon waking up this morning. I wish I knew what was causing all of this unsettling in my belly over the last few weeks. I’m scared to take anything because the fear of it binding and I experiencing the alternative is just as bad. However this leads me to make many trips necessary and unnecessary to the bathroom in fear of…
