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Tag: living with multiple sclerosis

Marshy’s joy run

Marshy’s joy run

My sweet, smart, sneaky boy got out the other day when I was leaving for therapy. Man he is fast. If I’m in the house, sitting in my chair, you can open the door up wide, he would never leave. Once he knows I’m going out, it’s a mad dash to get out before him. I am either in a scooter or using my walker there is no such thing as a mad dash for me. I purchased a gate,…

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Medical news today article about MS ‘mediator of the disease’

Medical news today article about MS ‘mediator of the disease’

Interesting article in medical news today. https://www.medicalnewstoday.com/articles/323071.php?utm_medium=gplus&utm_source=dlvr.it Brain inflammation is a marker of multiple sclerosis, Alzheimer’s, and some psychiatric disorders. A new study finds a subtype of brain cell that is key in neuroinflammation, bringing us closer to new treatments for multiple central nervous system diseases. Astrocytes are named for their star-like shape. Image credit: GerryShaw Multiple sclerosis (MS) affects at least 2 million people worldwide. Recent estimates suggest that 1 million people in the United States live with the…

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Keto diet for MS

Keto diet for MS

Wouldn’t be me if I wasn’t extreme. Vegan to Keto, that’s extreme. Why would I even think about this? A movie called the Magic Pill on Netflix. Ironically, it was watching Forks over Knives on Netflix that I became Vegan. My diet isn’t working anymore and hasn’t been working. I’ve been maintaining a ten pound unexplained weight gain following a plant-based diet and tracking on weight watchers. This past week I put on an additional 4 pounds. I don’t eat…

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Schools back reminder about oils Doterra

Schools back reminder about oils Doterra

I can’t say enough good things about these oils. I started feeling horrible on Tuesday with a chest cold starting. I consumed my one drop of Oregano and one drop of Onguard in some water. I woke up Wednesday not much better but continued throughout the day with Oregano and Onguard. By Thursday I was feeling better. By Friday, I was fine and I have MS and a weakened immune system. My daughter, at college, said she needed Oregano and…

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Pain, twitches and spasms oh my!!!

Pain, twitches and spasms oh my!!!

https://www.mstrust.org.uk/news/views-and-comments/neuropathic-pain-invisible-illness Neuropathic pain affects up to 25% of people with MS. It is a consequence of damage to the myelin that surrounds nerves in the central nervous system. Very commonly the pain is not due to physical damage to the nerve but as a result of a physiological change within it. This means that even when the initial cause is treated or removed, the nerve remains permanently changed and the resulting painful symptoms can become a long-term problem. Once present,…

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No Ocrevus infusion today

No Ocrevus infusion today

Shocking I know. This time there is a portion of my error involved. I told them last month my secondary insurance was Aetna, technically it is not. It is only secondary for certain things otherwise my secondary is Medicaid. What I’m not in error about is once again the infusion place waited until last minute to verify insurance. Since the information was wrong, they needed more notes from my doctors and couldn’t get approval done in time to order the…

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MS Bike Tour 2018

MS Bike Tour 2018

Each year my step-brother bikes for Multiple Sclerosis. This is his reasons, his letter and his team. Please donate to help find a cure for MS. He bikes under Team Jamie but he bikes for us all. Why We Want to Create a World Free of MS 9! years ago, when I said I wanted to ride 30 Miles for an MS Bikeathon, my step-but-real sister Jamie said “I can barely walk 300 feet – why do they do these…

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Plenty of fish rejection

Plenty of fish rejection

I took the plunge and rejoined plenty of fish. I had to re-enroll because every time I tried to retrieve my password, that I have forgot, it never sent me the link. So I answered all the questions, set up my profile and uploaded pictures. I got a phone call so I left the app before I had a chance to browse. When I came back it logged me out. I tried to put in the new password that I…

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New Multiple Sclerosis Culprit Identified-B-cells and T-cells in MS Medical News Today

New Multiple Sclerosis Culprit Identified-B-cells and T-cells in MS Medical News Today

https://www.medicalnewstoday.com/articles/323006.php New multiple sclerosis culprit identified It is still unclear what causes multiple sclerosis, but new research closes in on the faulty immune system mechanisms involved in the development of this condition. New research has identified another type of immune cell that may play a role in MS. Multiple sclerosis (MS), which is an autoimmune disease, causes the immune system to mistakenly attack myelin. Myelin is the substance that coats axons, which are the projections that allow neurons to connect…

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Yesterday was a good day

Yesterday was a good day

It’s important to talk about the good days when you have MS as it is the bad days. It started out in my pool. I swam my 25 laps. I’m happy to say that I’ve been back to swimming my 25 laps for about 2 weeks now. Took a long time for my body to bounce back from the set back I had in July with cellulitis but it finally did. Also I’ve been drinking water during my swimming and…

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