When I was in my college years, I interviewed for this summer job selling knock off perfumes. In the interview the question was asked on a scale from 1 to 10, how would you rate yourself? Without hesitation I said, an 8. The follow up question, of course, was why? My simple answer was because I’m nice. To this day that answer is still true. I’m just a nice person at the core. Of course I have my moments like…
One thing I can say for myself, is I never let MS dictate what I can or can’t do. When I was married I bought a treadmill. I’m sure you can guess, it wasn’t long before that treadmill became an extension of my closet. Clothes ended up being tossed over it more often than the treadmill was ever turned on. After my divorce I made the decision to buy an elliptical. In that decision I also made a deal, I…
I’m doing Zumba this morning. I decided to do one of the longer programs which means I’d be sitting soon. I now sit on my big comfy chair, at the edge, because first I could see the doggy pad and keep an eye on what Zoey is doing, and second because I find my comfy chair has a little bounce so it helps me bop. I got tired fast doing Zumba so I sat after the third song, but my…
I’m doing Zumba this morning. I decided to do one of the longer programs which means I’d be sitting soon. I now sit on my big comfy chair, at the edge, because first I could see the doggy pad and keep an eye on what Zoey is doing, and second because I find my comfy chair has a little bounce so it helps me bop. I got tired fast doing Zumba so I sat after the third song, but my…
I need to thank Jen from Tripping through Treacle’s http://trippingthroughtreacle.com/ Who reminded me of this. If you haven’t followed my blog, for almost a year I became vegan. I did it for health reasons. I wanted to see if it made any difference in my multiple sclerosis. The real reason I ended up stopping is because for some reason I started putting on weight. I ended up joining weight watchers and at the time being vegan was very difficult to…
It’s Friday. Happy Friday to everyone. It’s a gloomy day again in New York. That’s OK I’m happy to report I don’t need to go out today. I’m going Swimming though. I’ve been doing laps in the pool. LAPS!!!! I wasn’t able to do that a few months ago. I was hardly able to do a stroke. LAPS!!!! It’s exciting. The truth is my body remembers how to swim even though I haven’t tried it in years. . My feet…
I think I could just write the title and stop there. It was a big deal for me. I worked very hard to get into the size 8 that I was. More importantly I stayed in that size for eight years. I still have no answers to what’s going on and why my weight keeps coming on the way it is but it is but I can’t stop it. I’m doing all the right things and it’s just not coming…
As promised it was the first question I asked my neurologist. She explains that the study had 93 people in it. According to the study, over the course of a year, of the 93 people enrolled something like 20 of them had relapses that I never had a relapses before. That’s why they deemed that the high does biotin was not effective. This is the information on the application for the withdrawal. http://www.ema.europa.eu/ema/index.jsp?curl=pages/medicines/human/medicines/004153/wapp/Initial_authorisation/human_wapp_000247.jsp&mid=WC0b01ac058001d128. Well my doctor explained that she, as…
My mother sent me a text yesterday to write down the questions I have for the neurologist. It’s been 20 years, what questions do I still have for the neurologist? I know the research, I know what’s out there and I know what I’m on. Unfortunately, there is nothing for secondary progressive and therefore there is nothing that will stop the MS progression at this point. I’m very positive, but I’m also a realist. I’m not gonna run around with…
I physically see my neurologist tomorrow, but she wrote back to me in my email that I sent to her. She said that it’s she has heard of some of her MS patients getting swelling in the calves, ankles and feet area for some unknown reason. Her only concern is why it came on so suddenly with me and now seems to be an issue. My guess is it was coming on a little slowly but then got really bad…
