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Multiple sclerosis changed my life many times

Multiple sclerosis changed my life many times

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This blog was inspired by another MS blogger, who like me, has had this disease along time. Her positive spirit is always an inspiration. https://trippingthroughtreacle.com/2017/11/28/accept-adapt-succeed/ It wasn’t one time, it’s been many times. The first was the day I got my diagnosis. I didn’t understand what MS was. There wasn’t an internet yet I could search. I had to look it up in an old set of encyclopedias that were in my home. It had maybe two paragraphs in the…

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Sometimes MS just sucks

Sometimes MS just sucks

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It’s a dreary day today. It’s raining outside. My apartments all dark except for the light of my iPad. That’s OK, I don’t have much going on except for packing. I’ve been talking so much about my new place I haven’t talked much about MS. I finally was able to see my physical therapist  to get some exercises for when I fall and there’s nothing around me to help me get up. I’m on the physical therapy maintenance program so…

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No going back now

No going back now

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My apartment I’m living in has already been rented. A nice woman came yesterday and immediately left a deposit. First person to see the place. No going back now. Well hopefully we close before December 31st otherwise I’m homeless. I know we will but it still made my mother and I a little nervous. This other woman is putting notice on her apartment with her landlord so it’s like a ripple effect. Work done in the condo or not, I…

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Where is the real October weather

Where is the real October weather

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I’m wearing shorts on October 25th in New York. My windows are open in my house but there is no such thing as global warming. Oh please. This is crazy. https://www.accuweather.com/en/us/new-york-ny/10007/october-weather/349727. In case you actually care, everyday it’s been higher than normal this October. I always said I wanted weather like San Francisco 70 degrees and beautiful each day, guess I’m getting it except we get humidity. Yesterday was so humid and MS doesn’t like humid. It’s like starting five steps…

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Oh yeah I remember another manic Monday

Oh yeah I remember another manic Monday

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Good morning. I am not sure where my post is going to go today because I have no idea what I want to say. I have a headache again. I’ve been getting them more and more frequently. Luckily they have been going away with ibuprofen but I’m on medicine everyday for headache/migraines, why am I getting them? They were really bad when I was sick last week but I had one yesterday and now I have one today. I guess…

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Each day’s a gift and not a given right

Each day’s a gift and not a given right

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I found out last night, an old friend has cancer. It started as breast cancer and has spread to her bones. This is a woman I use to work with. She has the greatest sense of humor and her laugh is contagious. Life is very unfair sometimes. After I spoke with her, I was taking my dogs outside to their little dog run, and as I sat on my chairlift going down, I was grateful. I know that sounds horrible,…

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Fall has finally come, my MS thanks you

Fall has finally come, my MS thanks you

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I think it’s finally official, the fall has finally come to New York. For all those who don’t believe in global warming him, it was 77° in New York yesterday and it was warm and humid. It was gross. For people with multiple sclerosis, or at least me with multiple sclerosis, it’s the worst weather I can deal with. I wait every year to get through the summer and it just seem like this one never would end. My air…

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When to go into a wheelchair?

When to go into a wheelchair?

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There is only one answer to this, when you absolutely have to!!! Stay on your feet as long as you can. Once you’re in a wheelchair full time your legs will weaken making walking more and more difficult. I know this all but here’s my problem, walking is getting more and more difficult for me. I have both good and bad days but let’s say I go to the small grocery store and walk with my rollator, I can walk…

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Can barely walk but still driving

Can barely walk but still driving

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I have no idea how but thank god, I can still drive. I don’t drive much and I don’t drive far so when I’m in my car I really enjoy it. Especially on days like today when the sun is shining and I have the sunroof open. I love listening to my music way to loud. I use to love smoking and driving but I quit years ago. My car has brake hold. A wonderful feature that holds the brake…

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My week with a cup half empty

My week with a cup half empty

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Happy Friday to everyone. All is right in the world again. I am awake, although slightly reluctantly. I’m on my couch with a dog on either side of me. My daughter is home for the weekend. I saw her for a total of 10 minutes yesterday, from the train station back to house before she left again. That’s ok, I’ll see her today. I have an aide coming today. I’m going to get some soup cooked and maybe a vegan…

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