I have multiple sclerosis. Sometimes this disease makes it so difficult. I pray for a day that everything wasn’t so hard. Yet one day I’ll look back at days the way I am now wishing I could have these back. That’s the thing, I know in time, it will be worse. That’s a truly sobering thought, knowing for sure my MS will be worse. People ask how I have such a positive attitude, with the real knowledge I live with,…
Yesterday was not my greatest morning. Belly issues but I was able to avoid the mess of things by getting in the shower fast enough. I made it in the middle of the night and the morning. I was so proud of myself. Such a stupid thing to be proud of, yet I was. I was until I took a slip in the shower. It’s a small space and at first I held myself up slightly but I couldn’t hold…
Well unfortunately I had a tough morning. It seems my stomach is still having issues. I had to shower upon waking up this morning. I wish I knew what was causing all of this unsettling in my belly over the last few weeks. I’m scared to take anything because the fear of it binding and I experiencing the alternative is just as bad. However this leads me to make many trips necessary and unnecessary to the bathroom in fear of…
I’m doing a new program in the MS gym called standing strong. Yep has a lot to do with standing. I started phase 1 with my therapist. It had a lot of floor work as well as chair work. So I started integrating it with my previous program. I’m done with therapy but I really wanted to continue with this new program so I was determined to find something that I could make work without needing someone’s assistance to get…
Well good morning to everyone. Happy Monday. I am dictating this through my new iPhone. Hopefully the dictation goes better than the old phone, after all the issues I’ve had dealing with the purchase of this new phone, at least something needs to go right.You can’t make this up….  I must say, so far, it’s working really well. I’ve had a tough weekend, I’m still just not feeling great, not sickness wise, more MS issues. i’ve slept in every…
I’m exhausted. I just can’t start this blog any other way. I’ve been tired all week, shocking, I know. I think a major part of my fatigue has been the broken arms of my wheelchair. It was so difficult to get myself in position with that broken arm. I had my appointment yesterday. They were coming between the hours of 12-4. They showed up at 6:45. I was just so thankful they came I didn’t care what time it was….
My birthday present started this week. I enrolled in a weekly plan with Sakara. I originally found this food delivery company through my cousin and I got a scholarship for a full week of their food. https://multipleexperiences.org/2020/10/06/my-sakara-journey-begins/. It was so good, so fresh and perfect for me except the price. I knew I didn’t need a full week of food. It was way to much so that helped slightly because you can customize the weekly delivery. First I knocked out…
Friday was a tough day. I wrote how it started Persistent isn’t always a good thing but it never got better. I was exhausted most of the afternoon. My older sister came for a quick visit with her family but she too was having a tough week. I opened a bottle of wine for her. She poured some for the both of us. One of my favorite wines a JLohr Cabernet Sauvignon, thanks to dinners with my dad, I always…
First let me say happy Veterans Day. A very grateful thank you for all that have served in our military forces. That is truly a brave and courageous act that should never be unrecognized by any citizen of the United States. I was supposed to have my yearly physical yesterday. It took me two months to get this appointment because of Covid. I was called early in the morning that the doctor had to cancel because she was unwell. I…
Yesterday during physical therapy the first thing we did was put me on the floor to get up. I just knew I had the strength to do it at this time and the first time I got myself up fairly quickly. So we did it for a second time. This time was harder, but I still managed to get myself up. My physical therapist said I can give you pointers but nobody knows their body better than you. One thing…
