It didn’t flood in the streets yesterday so no daytime pictures to show you. Although that bulldozer is still there I’m excited today because we are playing mahjong here in my building. I’m excited to play but exhausted so I’m grateful to be playing here. I feed the dogs and showered that’s it, I’m wiped out. This is why I straightened my hair because I’d never have the energy anymore to blow dry and style. I’m glad I’m still able…
My fatigue set in very early yesterday making my evening extremely difficult. You know that things are bad when you don’t have the energy to get to the bathroom so when the urge comes it is instant dread. I have one of those hospital bed potty chair right next to me and I wear pads but I’m still trying to hold on to the last bit of dignity while I still can. Eventually I’ll loose that too so I am…
I am out of the house early today. Sitting at my primary doctor’s office for my annual physical. Nothing exciting but I did bring up my ever nagging issue of weight. As expected I was up weight from the previous year. No matter what I do, I am always up weight. It has been extremely frustrating. I worked so hard taking weight off and maintaining that loss for years. I still work so hard to exercise to the best of…
Ok another strange and embarrassing symptom of my MS occurs for no rhyme or reason and has to do with my breasts. Specially my nipples on those breast. I go through periods where they get and stay hard for days. Sometimes it could be to the point of painful. Erect nipples is not a comfortable thing for a long duration. I apologize to any men that are uncomfortable reading this and if it turns you on, all the more power…
It’s beautiful out a cool 63 degrees and I still have to have my AC on. The only downside to my condo is it’s angle. If the wind is blowing the wrong way this condo gets no air and can become hot with the morning sun. Today is that kind of day. There is no breeze out there. I hate that. I love having all the windows open and a cool breeze blowing and I’ve been robbed of it this…
Good morning happy Monday. I thought I’d give you the rundown of how I feel a week later after my Rituxan infusion. I’m happy to say the allergic reaction is healing and I’ve had no more blisters or open sores. Very bizarre. I’m still on the antibiotic and I have two more days left. I’m glad to say I am out of the chance of infection and I’m not gonna get cellulitis. All good news. I worked out yesterday for…
The nurse got there at 5:30pm so it was a long night. I knew she was coming late but once I had the day to do it in my head I couldn’t change course. She offered I refused. Anyway other than having to be stuck twice for the IV, it was uneventful. However it was long and I was tired. As soon as it was finished I got into bed and slept for a few hours but that was it….
My big box from the pharmacy was delivered yesterday. In it was 250mg Solumedrol, 600mg of Rituxan, and a whole bunch of syringes and needles. I’ve done these infusion for years now. I’ve done Solumedrol infusion for even longer. This time opening the box made my stomach drop. I’m dreading this infusion. I’ve done it so many times yet this time I really don’t want to do it. I’m a little afraid. Years ago I was coming off of a…
I just got off the phone with my neurologist, we are going to stick with the Adderall for now. I mentally feel great physically I feel ehhh. The good thing about it is I’m chipper again because I’m not falling asleep feeling like I’m in a cloud. That’s the good news. I don’t feel tired even though my body gives out. I’m venturing out today to play mahjong and be amongst friends. Tomorrow I’m having dinner with my friend. Other…
I got rid of the migraine that I had for three days straight. Nothing worked until I used a little medicinal marijuana for the first time in years. That at least took the edge off because it helped release the spasticity through my back. I woke up this morning ready to take on the day pain free. I wanted to swim this morning first thing. I was excited to once again try to hit my mile goal swimming laps. I…
