It’s beautiful out a cool 63 degrees and I still have to have my AC on. The only downside to my condo is it’s angle. If the wind is blowing the wrong way this condo gets no air and can become hot with the morning sun. Today is that kind of day. There is no breeze out there. I hate that. I love having all the windows open and a cool breeze blowing and I’ve been robbed of it this…
Good morning happy Monday. I thought I’d give you the rundown of how I feel a week later after my Rituxan infusion. I’m happy to say the allergic reaction is healing and I’ve had no more blisters or open sores. Very bizarre. I’m still on the antibiotic and I have two more days left. I’m glad to say I am out of the chance of infection and I’m not gonna get cellulitis. All good news. I worked out yesterday for…
The nurse got there at 5:30pm so it was a long night. I knew she was coming late but once I had the day to do it in my head I couldn’t change course. She offered I refused. Anyway other than having to be stuck twice for the IV, it was uneventful. However it was long and I was tired. As soon as it was finished I got into bed and slept for a few hours but that was it….
My big box from the pharmacy was delivered yesterday. In it was 250mg Solumedrol, 600mg of Rituxan, and a whole bunch of syringes and needles. I’ve done these infusion for years now. I’ve done Solumedrol infusion for even longer. This time opening the box made my stomach drop. I’m dreading this infusion. I’ve done it so many times yet this time I really don’t want to do it. I’m a little afraid. Years ago I was coming off of a…
I just got off the phone with my neurologist, we are going to stick with the Adderall for now. I mentally feel great physically I feel ehhh. The good thing about it is I’m chipper again because I’m not falling asleep feeling like I’m in a cloud. That’s the good news. I don’t feel tired even though my body gives out. I’m venturing out today to play mahjong and be amongst friends. Tomorrow I’m having dinner with my friend. Other…
I got rid of the migraine that I had for three days straight. Nothing worked until I used a little medicinal marijuana for the first time in years. That at least took the edge off because it helped release the spasticity through my back. I woke up this morning ready to take on the day pain free. I wanted to swim this morning first thing. I was excited to once again try to hit my mile goal swimming laps. I…
My dogs like candy corn. What a strange thing for them to eat!!! Both of them gobbled every piece I put in front of them. I ate candy corn for lunch and dinner, good diet. I had a very long day and didn’t eat until after 5 o’clock. By then I just grabbed food. I went to the grocery store and I’m a sucker for candy corn. I wasn’t planning on eating it but my night when I got home…
I made it!!! Another summer survived. I’m ready for my jeans and sweatshirts. Im ready to turn off the AC. I’m ready to open my balcony windows and let the crisp air in through the condo. I’m ready to snuggle under warm blankets. I did ok this summer mainly because of my van and wheelchair. I couldn’t have done most things without the use of my wheelchair. Thankfully my van provides me with that ability to be mobile and safe….
I went out yesterday for the first time this week. I went to mahjong. I almost canceled and I’m so glad I didn’t because as always it was so fun. I did have a tough day and at times I thought I was going to completely collapse over the table. I just couldn’t hold myself up but then the strangest thing happened. About 30 minutes before the game ended I felt better. Like I could sit up straight without falling…
This is my step brother’s 11 year biking for MS. He bikes in my name and for so many others that suffer from the disease. I received his email this morning and as always he fills my heart with love because of his fundraising efforts and the fact he does this in my name every year. 11 years of hard work – and 7 years of top fundraising efforts. And all thanks to you. Every year, donors like you have…
