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Tag: ms difficulties

A Rainy Day in NY

A Rainy Day in NY

Does rain ever affect your multiple sclerosis? I find lately that the moisture in the air does have a small impact on my day. It’s certainly plays a role with my migraines. I’ve had headaches basically all week. However today they are expecting a nor’easter. New York State agencies are gearing up for a Thursday-to-Saturday nor’easter that could drench and blast Long Island with rain and high winds and envelop upstate with snow, officials said. From the moment I woke…

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Second Ocrevus infusion postponed

Second Ocrevus infusion postponed

I received a call at 5:15 yesterday, the reason why is the kicker. The pharmacy didn’t have it in stock they had to order it. Well duh, it is a specialty drug not a stock item, of course it had to be ordered!!!! I not only made this appointment 6 months ago but I recently changed the date from Monday to Wednesday. So I’ve spoken to the infusion place a few times over the last few weeks. You’d think maybe…

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A day in the life…

A day in the life…

I’m seeing my sister from California today. She’s in for a very, very fast visit to New York and is coming out to Long Island for the afternoon. Yippee. I haven’t seen her in a while, she lives so far. I’m excited to spend some time with her today. First this morning I have to go to the doctor, yet again, to re-do bloodwork. Something where they didn’t take enough blood to get the test they required done. I don’t…

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A tough morning

A tough morning

I’ve added my Beachbody workouts back into my morning. I know that I push my body to its limit when I do these. I also know my body needs a long recovery time. I usually plan accordingly. Today, I didn’t plan on issues with Zoey too. I had to stop my workout to “clean up” after Zoey. Not normally a big deal but my legs were already 20 minutes into the workout. I ended up sliding down on the floor….

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When in doubt, blame multiple sclerosis

When in doubt, blame multiple sclerosis

When I first was diagnosed, maybe in the first 10 years, I have to admit any little thing I felt I used to think immediately it was the multiple sclerosis. It took me a while to kind of know how MS showed in my body, really what MS was, and how it was going to affect me. Now that it’s been 20 years, I think what I find amazing is when other doctors don’t have an answer so they blame…

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MS fall frustration

MS fall frustration

It’s Sunday and I usually post a song or a recipe. I kind of take the day off with the blog. However today I’m gonna write a quick post about falling. I still fall a lot. I walk with a walker all the time but I still have moments that I can explain I just lose balance. I was on the side of my bed, cleaning up my dog area, my bed and the wall right next to me and…

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My 20 year anniversary with multiple sclerosis

My 20 year anniversary with multiple sclerosis

It just dawned on me, that February 14 was my 20 year anniversary with MS. It was the weekend of February 14 that I was moving it to my house with my ex-husband. My left leg started to feel numb. The numbness started traveling up my leg through my muscles. I wasn’t just numb, my muscles were becoming week and atrophied. It was The following Friday I went to a family doctor who sent me immediately to this neurologist. To…

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Me and my MS got along well on vacation

Me and my MS got along well on vacation

You have to be thankful for the small things. I’m grateful that my multiple sclerosis “issues” were handled effectively for my stay in Florida, despite the heat. I know both my dad and stepmom are nervous. They aren’t around me daily and the symptoms of my MS scare them. It’s more the fears of the falls I think. I did fall but neither of them were in their presence. One was me once again sliding off the toilet. What’s with…

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Physical therapy and exercise with MS

Physical therapy and exercise with MS

It’s that day again…Monday. It comes quickly, doesn’t it? It starts my week to even though I don’t go to work anymore. I start each Monday with physical therapy again. Let me explain physical therapy. Physical therapy is like exercise. I hate it, but I know it’s important and it helps. Therefore I do it with a smile each time. You know those endorphins you are supposed to get when you work out? In the eight years I worked out…

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Patting myself on the back

Patting myself on the back

Go me!!!! My aid couldn’t come today, so I couldn’t go to the pool. I guess I could’ve asked my daughter to come with me, she would have, but I didn’t want to bother her. Instead I got my Beachbody programs on my TV and I did my workout. I haven’t done my Beachbody workouts probably since July, thanks to the shoulder tendinitis. I always refused to let MS tell me what I couldn’t do and amazingly it was my…

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