My neurologist has joined one of the big group hospital networks as most of the doctors on Long Island are forced to do. I’ve been with him for 23 years. Everyone in his office knew me. It was originally his first wife, who unfortunately passed away, and another secretary. They added an additional bookkeeper when his wife got sick about 15 years ago. It has been the same staff all these years. I could call up and say hi it’s…
I was taking it easy this morning with exercise because physical therapy starts today. Yet I’m huffing and puffing as I sit down to write this. I wanted to be in somewhat a stronger state because unfortunately he is coming late today, at least late to my MS body. He won’t be here until 3-3:30. This is the point in the day where my energy level starts to decrease at a rapid pace. I always say from the time I…
I was watching a show about the Amish in Pennsylvania. I think what shocked me the most was some of the county’s names. I knew of Intercourse, PA but was amazed there is a place called Blue Ball, PA. It starts to make something innocent like Mount Joy, PA to maybe be not so innocent. I mean who came up with these names??? Sure you go from Blue Ball, PA and suddenly you enter Mount Joy. Happily moving to Intercourse,PA…
Not one of my better weekends. The humidity picked up significantly here and my body instantly felt the difference. I had a headache all day yesterday coupled with general weakness. Just made for a very tough day. I didn’t sleep well and of course that never helps. They’ve already started setting off fireworks around me. I learned that Minx HATES the noise they make. I can only imagine what he will be like as we get closer to July 4th….
Good morning world. I’ve been a busy beaver. Now that I’m feeling better I went back to cleaning. Yesterday I took on my nightstand. This is partly due to the fact that some of the items I would normally put in these draws have been thrown up on my computer desk. A not so steady area on a good day. This is also a place in my room I hit with my wheelchair weekly. To my own defense it is…
Yes it was definitely more expensive than other walkers but keeping you in the upright position is HUGE. I was exhausted by the time I got it together yesterday and even with my heavy, difficult steps, I knew this was the right purchase. It is such a difference because you are standing straight. In the MS Gym we work everyday on BGB, butts, guts and blades. Keeping your butt tucked, your stomach in and your shoulders back to give you…
Better today but still so tired. I went into bed at 8 last night and got out of bed after 8 this morning. Today is the first day I’m drinking coffee. Hopefully that helps. However I can feel already my body is exhausted. I did a very simple 30 minute workout because I have a few things going on today and didn’t want to overdo myself. Yet I’m sitting here exhausted. This is not good. So much has gone on…
Rough day yesterday. I didn’t feel well when I woke up in the morning. I didn’t pay attention. I did my normal routine and was working out when Minx started eating something he shouldn’t. I reached down to pick up my grabber, which I myself knocked over, and literally fell out of the wheelchair. I got myself right back up but was unable to turn around and get myself back into the wheelchair and slid down again. My body was…
I have multiple sclerosis. Sometimes this disease makes it so difficult. I pray for a day that everything wasn’t so hard. Yet one day I’ll look back at days the way I am now wishing I could have these back. That’s the thing, I know in time, it will be worse. That’s a truly sobering thought, knowing for sure my MS will be worse. People ask how I have such a positive attitude, with the real knowledge I live with,…
I’ve been so tired lately. I never really took in to account how my body would react to work being done in my place. I knew I would be shifted around slightly but didn’t think it was a big deal. I was clearly wrong. By the time the afternoon comes around I’m struggling to get myself to the bathroom. I’m back to dreading every time the need comes. Sometimes I’m so tired that the hesitancy I talked about recently Bladder…
