Last week it in New York it was in the single digits before you add it in the wind factor. At that point it was the negative digits. I went out to eat at a restaurant with my family. The restaurant had open windows on all sides and even though the heat was turned up, it just couldn’t compete with the cold outside. The restaurant was freezing. We were there with cousins we haven’t seen in a while so it…
I’ve lived in my condo officially two weeks today. I know I sound like a broken record and I apologize, but I just am so happy. I’m always blogging about all the bad things, living with multiple sclerosis and how tough it is, it’s just so nice to recognize the good things. Every day I say to my mom, I love this place thank you so much. I probably could say that every day and it would never be enough….
It’s been four days that I have owned the condo. However it’s only been three days that my new scooter has been in my condo. I have to admit it, life is a lot easier in the scooter. I’m getting tired doing the walking. Every day is a struggle and it’s just getting harder and harder. My steps are getting slower and slower. I do the simplest task and I am just completely wiped out. Then I have to walk…
ALL NIGHT!!! I may have slept for twenty minutes at the most. I know at some point my dogs started playing with each other like it was the afternoon. One of them was sick, I was cleaning up my floor at wee hours of the morning. I was crying because when I’m that tired and can’t sleep I get very frustrated and cranky. I can’t take not sleeping. It’s just the worst thing that could happen t me. It’s this…
This one is not for my family. This is a bad one, so I give you the advance warning. Everyone’s been telling me I’m doing too much.I am a little stubborn about slowing down. I been having a lot of trouble at physical therapy lately. I had been fatiguing not just a little but severely and I don’t know why. It’s the same routine I had been doing since November. Luckily, I had my daughter around when I got home to…
I’m sitting here with six exercises left of my P90X routine. Fuming actually that I haven’t been able to continue to finish the last six exercises. This is certainly a first!!!!! I really just want to say go to hell MS. This is such a sucky disease of times. It’s not bad enough that it takes a lot to muster the energy to exercise for any given person but an MS person its more of a push. I’m sitting here…
I’ve been up since 4am, listening to old episodes of Cheers, while I laid in bed praying I’d fall back asleep. Even Zoey and Marshy were snoring away, but not me, I just laid there, hour after hour. I finally gave up at around 7:30 and made coffee. I start each day with a certain amount of steam in me that fizzles as the day goes on. How much steam I start with can vary everyday. I read on a…
I’ve written blogs about this in the past, my daughter at 17 takes on the bulk of the responsibility. It’s not something a 17-year-old signs up for, and she’s been doing it for years. My mother takes on the brunt of the emotional side of my multiple sclerosis. Another topic of my blogs that you could find throughout. My step dad takes on the emotional backlash of what my mom takes on, breaking his heart. Plus he’s the one taking me to…
I was asked today by my physical therapist how are you? I am sure anyone with a chronic disease thinks this is a loaded question. Actually a good friend of mine called me the other day and said, “I’ve learned so much about you and what you deal with on a daily basis from reading your blog. I never knew. Some of it makes me laugh, some makes me feel so bad that I can’t help you, but I never…
Should I say Happy Anniversary to myself? It was an after work doctors appointment January 21, 2016 when he said “ENOUGH”. He knew since the summer before I was getting worse, I was the one in denial. On January 22, 2016 I called my job and said my doctor is putting me out on disability and I never was back. I kept pushing and pushing to continue to work. I was working part in the building and part at home,…
