I just got off the phone with my neurologist, we are going to stick with the Adderall for now. I mentally feel great physically I feel ehhh. The good thing about it is I’m chipper again because I’m not falling asleep feeling like I’m in a cloud. That’s the good news. I don’t feel tired even though my body gives out. I’m venturing out today to play mahjong and be amongst friends. Tomorrow I’m having dinner with my friend. Other…
I got rid of the migraine that I had for three days straight. Nothing worked until I used a little medicinal marijuana for the first time in years. That at least took the edge off because it helped release the spasticity through my back. I woke up this morning ready to take on the day pain free. I wanted to swim this morning first thing. I was excited to once again try to hit my mile goal swimming laps. I…
Hello Saturday and a beautiful one at that. I have all my windows open to a quiet street. The bars by me are done for the summer season and it gets so peaceful here. Look at that beautiful water so calm. Understand I took this picture from inside my house on my comfy chair. If I went to where my Marshy was sitting it would have been even better. However I have no need the view is breathtaking. It has…
My dogs like candy corn. What a strange thing for them to eat!!! Both of them gobbled every piece I put in front of them. I ate candy corn for lunch and dinner, good diet. I had a very long day and didn’t eat until after 5 o’clock. By then I just grabbed food. I went to the grocery store and I’m a sucker for candy corn. I wasn’t planning on eating it but my night when I got home…
I am going to my neurologist today. I needed a form filled out by him that has to be within 30 days of my last appointment. Of course my last appointment was in the beginning of July so I had to come in again. Yet this probably isn’t a bad thing because I can once again address the exhaustion. I felt so tired yesterday I got into my bed around 6. My body was just so tired I couldn’t fight…
I went out yesterday for the first time this week. I went to mahjong. I almost canceled and I’m so glad I didn’t because as always it was so fun. I did have a tough day and at times I thought I was going to completely collapse over the table. I just couldn’t hold myself up but then the strangest thing happened. About 30 minutes before the game ended I felt better. Like I could sit up straight without falling…
This is my step brother’s 11 year biking for MS. He bikes in my name and for so many others that suffer from the disease. I received his email this morning and as always he fills my heart with love because of his fundraising efforts and the fact he does this in my name every year. 11 years of hard work – and 7 years of top fundraising efforts. And all thanks to you. Every year, donors like you have…
Since yesterday didn’t quite work out as I wanted I’m trying again today. Got my fur babies close. I haven’t worked out since Monday. Giving my body the break it needs. Hopefully I’ll be able to sleep more and the phone won’t ring all day like it did yesterday. This is all part of having MS and I understand that. It is a difficult part of the disease but I’m doing what I can. I’m a MS warrior like so…
I’m just having a tough couple of days. I am just so tired and my body isn’t recovering yet. I hate this feeling but I can’t even complain. I haven’t felt like this in a long, long time when my energy is drained for so many days in a row. It is a horrible feeling but I do have the means now to make things easier for me. Yesterday I did manage to do my Turbo Jam Beachbody workout. I…
I have nothing left this week. I’m just drained of all my energy. No spoons left, no reserve and no choice. We are picking up my daughter’s new car this morning so I’m up, dressed and ready to go again. I am sure it will be at least an hour signing all the paperwork and driving myself home again. Tonight is a family dinner before she leaves for school. I need a down day, I need a few down days….
