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Tag: ms over 10 years

Housing help for those with Multiple Sclerosis

Housing help for those with Multiple Sclerosis

To recap my situation, I had asked my condo for a permanent parking spot close to the main door. This was because it was the only door I could enter that didn’t have steps, which I can’t do, and wasn’t too far for me to walk. It was granted. Then due to other condo residents requesting the same thing, they gave 5 other people spots. The non-disabled residents had an uproar. Now they voted to revoke ALL the reserved spots….

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A MS anger post

A MS anger post

If you follow my blog you know I’m normally positive. I don’t have the energy to be positive right now. I am so tired of being 46 and having to have somebody cut my food. If I make some sort of protein for dinner, like steak which I recently started eating, my aid has to cut it before she leaves. I could barely even cut chicken. I can barely use one of my stainless steel silverware and usually opt for…

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Running on empty

Running on empty

Man I am beat. I am so tired and I’ve really done nothing but what I’ve done is enough to exhaust me. July has certainly has been a very tough month for me. It started out with my insurance changing to Medicare. Goodbye referrals!!! However, I also had many doctors appointments appointment scheduled because of it. Then I ended up with cellulitis at the beginning of July. July 9 actually was my first trip to the emergency room. I know…

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2nd medical insurance assessment for home health services

2nd medical insurance assessment for home health services

My agency where my aid comes from that I been using for over a year is not acepting my insurance anymore. I have the option to change insurance companies and continue to use my agency or I just have to find a new agency. Right now with my current insurance, I receive five days a week, eight hours a day of home health aid services. I had an assessment last week and where they only offered me five days a…

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Life without coffee, I don’t think so.

Life without coffee, I don’t think so.

That is not a life for me. It isn’t even the caffeine that I need, although I am addicted to that now, it is the taste. Ever since I was young I loved the taste of coffee. When I’d go anywhere with my mom if they had coffee, I’d ask for it. She’d give me a cup of milk with a splash of coffee. I’d always try to sneak more in my cup. For as much as I love the…

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High dose biotin

High dose biotin

Since I was in the hospital, this is one of the pills that has changed. First it never made my weekly pill box, which was just a complete oversight. Second, the hospital doesn’t give that out. So I must say I haven’t correctly taken my high dose biotin for a week. It occurred to me, this morning, that this could be the reason I’m having difficulties regulating my body temperature since about Saturday. I finally started taking it again 3…

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High dose biotin

High dose biotin

Since I was in the hospital, this is one of the pills that has changed. First it never made my weekly pill box, which was just a complete oversight. Second, the hospital doesn’t give that out. So I must say I haven’t correctly taken my high dose biotin for a week. It occurred to me, this morning, that this could be the reason I’m having difficulties regulating my body temperature since about Saturday. I finally started taking it again 3…

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Regulating body temperature with MS

Regulating body temperature with MS

I almost forgot this fact, well slightly forgot this fact. However my multiple sclerosis let me know it is still here in abundance. I got that crazy symptoms yesterday where I couldn’t regulate my body temperature. I’m sitting on my chair inches away from the AC and sweating. Sweat was literally dripping down my neck. Why? I wasn’t even moving. Normally this happens after I eat maybe something a little hot, this time it happened for no apparent reason. Guess…

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Ocrevus and the compromised immune system

Ocrevus and the compromised immune system

I’m happy to report I was discharged from the hospital last night. One thing I know, from my career working in nursing homes, hospitals like to discharge on Friday to make room for the weekend influx. The infection disease doctor would have held me to today but I really wanted to go and the main doctor was for it. So what did I learn from this? First of all this happened from a simple fall. The fall gave me a…

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Live from my hospital bed

Live from my hospital bed

So I ended up being admitted to the hospital. MS for 20 years and a little fall causes cellulitis and a skin infection and I ended up admitted. Last time I spent a night in a hospital was 19 years ago giving birth to my daughter. Same hospital I might add. I had a horrible night because of all the fluids they are pumping in my veins via IV caused me to need the bathroom often. Wouldn’t be terrible if…

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