I’ve been wanting to get handicap plates on my van since I purchased the vehicle. There was a whole thing with the plates because I purchased the van in New Jersey and I live in New York. At that time I would’ve had to surrender the plates and re-register after I just paid the NYS 2 year registration fee. New York State isn’t very good at giving you money back and prorating so I just stuck with my handicap tag….
Ive had pretty significant changes that have been happening regarding my multiple sclerosis symptoms lately. In the grand scheme of things they might not seem significant but for me they are. My feet are pointing and flexing. They actually do it even better than this little video but I took this right after I worked out. My chin muscles are moving my feet really well. Not bad for someone with foot drop. I started phase 2 of standing strong and…
I’m doing a new program in the MS gym called standing strong. Yep has a lot to do with standing. I started phase 1 with my therapist. It had a lot of floor work as well as chair work. So I started integrating it with my previous program. I’m done with therapy but I really wanted to continue with this new program so I was determined to find something that I could make work without needing someone’s assistance to get…
Well good morning to everyone. Happy Monday. I am dictating this through my new iPhone. Hopefully the dictation goes better than the old phone, after all the issues I’ve had dealing with the purchase of this new phone, at least something needs to go right.You can’t make this up….  I must say, so far, it’s working really well. I’ve had a tough weekend, I’m still just not feeling great, not sickness wise, more MS issues. i’ve slept in every…
I wasn’t feeling well all day yesterday. I actually napped most of the day. Well I had the TV on and my eyes closed. For me that’s pretty much napping. I just didn’t feel well. No fever, no aches but my muscles felt sore. That was the best way for me to describe it. I went to sleep early but unfortunately that didn’t go off quite as I intended. At about 2 o’clock I was woken up with bathroom issues….
Hello again, it is once again Monday. I’m very happy to say my aide will be here today. Unfortunately, it will take me some time to recover from the last week doing it mostly alone. Even having food prepared and only doing what I absolutely had to do, it was a rough week. There is a reason I have an aide. I sometimes feel like it is really just to babysit me but truth is the amount of energy it…
Another night of interrupted sleep. You know it was a bad night when you already have 6 boxes of stand credit on your Apple Watch that just reset at 12am. I was up every other hour to use the bathroom. The only time I actually slept longer than two hours was from 6:30-9. I wish someone could explain that one to me. I don’t drink a lot at bedtime. I didn’t even use the bathroom that frequently during the day….
I have a bond to pick with my Apple Watch. In the fitness settings there should be a track for disabled. That track should be worth double of that of a person who is well because each move for me is 10 times harder. My heart rate tracker I’ll never understand, I’m huffing and puffing and it’s saying like 109. I think as someone disabled I should be earning double the calories burned as well as earning double the time…
I’m exhausted. I just can’t start this blog any other way. I’ve been tired all week, shocking, I know. I think a major part of my fatigue has been the broken arms of my wheelchair. It was so difficult to get myself in position with that broken arm. I had my appointment yesterday. They were coming between the hours of 12-4. They showed up at 6:45. I was just so thankful they came I didn’t care what time it was….
Yesterday I purchased one of those massage guns. I’ve been looking at them for a while because sometimes I’m in such pain from spasticity. Last night was one of those nights where out of nowhere my whole back a neck tightened. I always describe this like someone took a fork and twisted it like they were trying to get spaghetti twirled around. Except it’s not spaghetti it’s my tendons. The area just becomes so tight so fast. It starts at…
