My neurologist from early on has done MRI’s of my spinal cord. It is where most of my MS activity has been over the last 21 years. My first major attack back in 1998 left a large lesion in my brain but since than it has really all be spinal cord. So what does that mean? Well I asked my doctor the same question. He said spinal cord is why I have no cognitive issues as I’ve progressed. He also…
It’s was my routine checkup with my neurologist today. One month shy of my 21st anniversary of my multiple sclerosis diagnosis. This appointment was with the neurologist that made that diagnosis 21 years ago. He knows me well. My folder is very thick and over the years it has been thinned out and moved into storage. Every time I see my file it is a reminder how long my history with this disease has been. 21 years. I ignored it…
I asked in therapy about the issue I had in mahjong last week https://multipleexperiences.org/2019/01/04/couldnt-hold-myself-up/ with holding up myself up. We discussed the issue with my weakened core muscle. I’ve had multiple sclerosis for almost 21 years and it was my core region that was on of the first things effected by MS that never got better. It an area that has always given me issues and has always been an area we work on in therapy. A while ago I…
This wasn’t good. I went to play mahjong for the second time yesterday. It is a game like rummy cube with Asian tiles. Your hands must match to an approved hand on a card. You play with four people around a square table taking turns picking and throwing tiles. Not very strenuous unless you have some type of multiple sclerosis symptom making it difficult. I had that MS symptom. At first I was fine, other than my game itself. However…
One of the most common of MS symptoms are spasms. They can range from mild to severely painful. I know many people with both extremes. I am considered mild. I have them in my legs mostly but also in my back. It’s my back spasms that can have the highest degree of range. On a good day I may have a few spasms in the whole day. A bad day I’ll have a few spasms every hour. Even the spasms…
This month they had a few interesting articles on new MS research I thought I’d enclose. https://msfocus.org/About-Us/MSF-News-Articles/167 A new study shows an overlooked source may be able to replace lost nerve insulation and provide a new way to treat multiple sclerosis. The discovery of mature myelin-producing cells’ capacity for repair opens new opportunities to slow or reverse the disease. That may call for new therapeutic approaches that rally the oligodendrocytes to reach out with new lifelines to damaged myelin sheaths….
I had a good weekend. I got my 6 hour online drivers insurance reduction course completed on Saturday. Had a really nice birthday brunch with my friend yesterday. Even consumed too many Bloody Mary and was slightly drunk. I managed to not only have zero falls this weekend, I also had zero bladder accidents. I stayed up past 9pm Friday and Saturday night and still got up my normal times in the morning. I think it is safe to say…
I’ve shared numerous times how I started a Go Fund Me for help getting a handicap van. I had some donations but it wasn’t moving most days. Since my birthday is coming up tomorrow I got something from Facebook about starting a fundraiser, so I did. I am so overwhelmed by the people that have donated to my fund. People I went to high school with, college, my family, my sorority sisters, my work friends over the years and friends…
It’s been a while, seems like months, but it’s only been a few weeks. I am finally getting back into my weekly routine. I’ve said this many times in my blogs, I need the stability of the routine. It helps me function and cope in each given week. When I’m out of routine I feel a little lost. My MS may even act up and become cumbersome. Might be part of the reason for my lethargic ways these last few…
I have to admit, I never expected the handicap vehicle to be quite so much money. I’m glad at least when I started this journey I did start at the dealership first. I have a foundation from multiple sclerosis that is helping me but they certainly didn’t have enough funds for the entire van, or anywhere near it. The multiple sclerosis foundation only helps with the purchase of the conversion and they certainly don’t cover the full cost. I’ve done…
