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Tag: Ms progression

Migraines with multiple sclerosis

Migraines with multiple sclerosis

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This is the strangest topic with multiple sclerosis because migraines themselves are a very tough thing to medically see and explain. Migraines don’t show up on any MRI, blood work or Cat Scan. Doctor’s go solely on the patients account of the symptoms. The National Multiple Sclerosis Societyhttp://www.nationalmssociety.org/Symptoms-Diagnosis/MS-Symptoms/Headache  says this about headaches: Although headache is not a common symptom of MS, some reports suggest that people with MS have an increased incidence of certain types of headache. One report noted…

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Multiple sclerosis past, present and future

Multiple sclerosis past, present and future

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I’m a very big fan of Flipboard . I use it a lot,  I post my blog, I read articles and I find recipes. I save all my recipes in a magazine, you could click on my recipe magazine right down the side of this blog. Yesterday I came across a great article about The Story of Multiple Sclerosis and It’s Major Milestones http://flip.it/udMksk. I just want to highlight the milestones. 1824 1st clinical description of multiple sclerosis 1868 Multiple sclerosis…

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Just another manic Monday

Just another manic Monday

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You think I ran a marathon this morning. It’s 8 o’clock, I’m exhausted. This day is not going well at all so far. It started off with in a ms issue, that I just rather not discuss. However from past blogs, I’m sure you can do your own guessing.  What’s worse is im pretty sure I brought this problem on myself. I ate leftover curry soup I made. I thought the taste might be off, could veggies go bad in…

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Getting an aid getting help…accept, adjust, adapt

Getting an aid getting help…accept, adjust, adapt

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For all the bad moments, there are always good moments. I would love to say that I’m feeling a lot better, that whatever is brewing with my MS is gone, but I unfortunately can’t.  However as always, I’m back to my normal, my usual somewhat positive self. I think that might have to do with the fact that my little sister is in from California and I’m seeing her today.  The sun is out, although that wind is howling, but…

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The multiple sclerosis hug symptom seeing my neurologist

The multiple sclerosis hug symptom seeing my neurologist

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Over the years, a repeated cycle has always occurred when I went to an appointment with my neurologist.  I would see him and a week later I would have some sort of MS problem. I would up either back at his office, on steroids or at an MRI usually all 3. Over the past week I’ve been waking up feeling like I smoked a pack of cigarettes the day before. I’ve had this feeling before but never knew what it…

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High dose biotin going on 5 months patient thoughts

High dose biotin going on 5 months patient thoughts

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http://sumo.ly/moZo I submitted a link to the biotin research/clinical study that showed that it may be helpful in people with progressive forms of multiple sclerosis. I am writing from my own perspective from taking the medicine. this excerpt is from a past blog post of mind explaining what my doctor has noticed  I get a 100mg pill I take 3 times a day from Ace pharmacy https://highdosebiotin.net . I just completed my 4th month somewhere in the middle of my…

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A family gathering always worth it

A family gathering always worth it

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I had a Bar Mitzvah yesterday. That’s when a boy (Bat Mitzvah for a girl) turns 13 and becomes an adult in the Jewish religion. It was my 1st cousins son’s event. I was at her Bat Mitzvah 28 years before. Ok that’s one way to put the whole age thing into perspective. Dressing in simple clothes is overwhelming adding the fancy outfit and full make up…Well I gave myself plenty of time to work in stages to hopefully prevent…

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The mental progression of assistive devices

The mental progression of assistive devices

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This is so follow up or maybe part 2 of yesterday’s post. I’ve listen to many people and read many blogs that discuss the need for assistance devices and how they “aren’t ready”. A huge part of the progression of multiple sclerosis chips away at your personal independence. It’s a stage of the disease that affects the ego and the perception of normal or healthy. It’s when we start to look different from everyone else. When we can’t hide the…

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You don’t look sick….

You don’t look sick….

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Anyone with a chronic disease can tell you that those 4 little words, “you don’t look sick”, is enough to drive them crazy on the spot.  I’ve written many blogs about symptoms of multiple sclerosis you’d never see. https://multipleexperiences.org/2017/01/23/multiple-sclerosis-serious-symptoms-respitory-issues/ https://multipleexperiences.org/2016/12/04/multiple-sclerosis-silent-symptoms/ https://multipleexperiences.org/2016/11/28/lets-talk-about-sex-and-multiple-sclerosis/ https://multipleexperiences.org/2016/08/05/im-not-tired-im-fatigued/ Multiple Sclerosis, especially in the beginning, can look silent at first. For the first 8-10 years I had barely a limp when I walked. I would fatigue if I walked too much and by too much I mean…

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The good days verses the bad days

The good days verses the bad days

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I was asked today by my physical therapist how are you? I am sure anyone with a chronic disease thinks this is a loaded question. Actually a good friend of mine called me the other day and said, “I’ve learned so much about you and what you deal with on a daily basis from reading your blog. I never knew. Some of it makes me laugh, some makes me feel so bad that I can’t help you, but I never…

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