Well I canceled my therapy until further notice. After my blogs last week Not liking physical therapy PT like it or not…, you’d think I’d be happy making this decision but I really wasn’t. I’m not trying to be overly dramatic about the Coronavirus but I am trying to be smart. In therapy I can name fifty surfaces or more I touch that someone else has touch seconds before. They do not sanitize every surface in between patients. It is…
So my mom called yesterday and discussed the coronavirus with me and my weakened immune system. I can’t lie I was expecting this conversation with her and was pretty amazed she’s lasted this long. I also have to admit it’s been in my head. To make things worse, my infusion is coming up. I decided to write to my MS specialist. This is what she wrote me back: Hi Jamie, I hear you. Right now there are only a few…
Good morning and happy hump day to all. Got through the day of exhaustion from therapy yesterday. At least I had a justifiable reason for being fatigued. I even made it to my hair appointment and no more grey hairs, at least for the next 5-6 weeks. My wonderful hair dresser, who is also a good friend, even blew out my hair for me saving me a step so I didn’t have to deal with it myself. I’m almost due…
This might be brief. I just got home from my double therapy sessions. I am wiped out as expected. OT was challenging and PT was hard as expected. I can’t say I dislike my new PT therapist she knows what she is doing but makes me work. She is more focused on my exercises, all of them. Today she had me doing the leg press from the chair. I’ve done this a million times in therapy and found it to…
So after a second day of consuming a regiment of oregano oil and using Doterra Breathe, I got into bed sneezed once and never sneezed again. Achoo-ing through the night. Woke up fine. So strange!!!! I’m doing much better with the Provigil. I’m so happy to report. I am no longer waking up exhausted as if I never slept. That has been such a huge difference that I’ve been able to get back to my life. I have still been…
This has been a very mild winter. I think there has only been one day that it actually snowed and the snow was about an inch. Not that I’m hoping for big snow storms because they’d keep me housebound, but come on, it’s winter. I need at least one good storm. I love looking out the window to the white world when everything is quiet because no one has gone out yet as the snow continues to fall. That is…
I had a nurse evaluation yesterday for the agency. Nothing shocking, mostly paperwork stuff. My medications were listed for the dosage and times I take them. I’m taking 9 different medications at 48 years old. That’s a lot of pills. If you include the vitamins it’s 17. A crazy number yet they all serve a purpose and that’s what the evaluator and I were discussing. Most I take at night because they cause drowsiness so I got the warning about…
Everything worked out with the agency. They found an aid to cover the days that my normal aid is out. She is very nice and the dogs are fine. Thankfully it’s all good. I just didn’t sleep well last night. I woke up at 3am and really never fell back asleep. I was sweating all night too. Of course I was wearing a white T-shirt that my hair color has now dyed red spots on. I should have turned my…
I’m back with an agency and as of 5pm Friday they had no one for me on Monday. We are off to a great start. They told me it’s because of my dogs. They have difficulty placing aids in households with animals. Well I’m not giving up my dogs so if I have to change agencies 100 times, so be it. I’m sure my current aid, whom I love and done all this stuff for, won’t be taking time out…
Day two of waking up and not feeling tired. I can’t even put into words how great that is. I am starting to feel more like myself. I still was in bed by 8 yesterday and sleeping before 9. I also had no strength in my legs and had to transfer directly from my wheelchair to my bed. Yet all that is ok because I woke up peppy and smiling. I woke up in good spirits with energy and it…
