I don’t move when I sleep. I’ve slept on my back as long as I can remember. The only thing that moves throughout the night is my head. I may turn to the left or right on the pillow thus leaving the back of my hair slightly knotty yet the front perfect. If it wasn’t for my Marshmallow going under and out of the blankets all night long the bed would look completely undisturbed other then the space where I…
I ended up giving myself an easier week. I needed that. I was too run down trying to do everything. I think I’m feeling somewhat more together again. I love being part of all my activities but in truth they can also take a toll on me. This week I had to pay closer attention and not participate in everything to the fullest. Guess what, my friends are still my friends. No one was offended I cut out early and…
I’m happy to report I have had no strange incidents with my wheelchair, Houdini, this week. My wheelchair might be trying to kill me. However it is only Wednesday and I’m hoping I haven’t spoken too soon. I name all my things: cars, assistive devices, even the TV (although that name was lifted from an episode of Friends). My first rollator name was JJ Walker, the character that said “Dynamite” on Good Times. It was a very heavy sturdy walker…
Meet Hubert He is the Service dog of a woman, Andrea, who participates in therapy every week. She is a lovely woman but her dog, he is amazing. Nothing makes me happier than seeing him. Unlike most Service dogs, Andrea lets him get pet while wearing his hair vest. He gets a lot of love from everyone, especially from me. I conquer occupational, physical and pet therapy all in one day. It was because of this dog I wanted to…
I’m starting to think my wheelchair might be trying to kill me. I feel like the movie Christine by Stephen King except it’s me that is the target. On Saturday once again I got ran over by my wheelchair. I ran myself over with my wheelchair. This time my shirt got caught on the controls again but as it knocked me over it also pinned me up against my balcony door. Since my shirt was caught the wheelchair was still…
It is a gray day here. Windy and rainy. I am in my pajamas and planning on staying this way for the remainder of the day. It has been a rough week for me. I ran myself over with my wheelchair No joke, I’ve fallen again Besides my falls, I have literally scratched up every single wall in my house. I guess in my exhaustion, keeping the wheelchair straight also wasn’t one of my strongest abilities. I am physically spent….
Omg it happened again yesterday where I fell to the floor but this time it wasn’t so comical. I was beyond exhausted coming home from mahjong. It even took me a couple of minutes to get from my wheelchair to the drivers seat. Driving isn’t an issue for me because the muscles required for that weren’t the muscles that were the cause of exhaustion. I know my dad is reading this and he neither understands that or feels comfortable with…
It happened again, I ended up on the floor and couldn’t get up. However how it happened was slightly comical. I ran myself over with the wheelchair. My sweatshirt got caught on the control as I was making my transfer to my chair. I got knocked over with my arm still attached to the chair. If it was on video, trust me we’d all have a laugh. This is why they always tell you to shut off the wheelchair when…
I’m putting on my MD hat today and I’m diagnosing myself. I think my bizarre toe MS symptom isn’t MS at all. Annoying MS symptoms strike again I think it may be gout. I’ve had this weird symptom for a couple of years now and it never dawned on me until yesterday that it was anything other than MS. I was getting my hair done with my mom, (which came out fabulous I might add), telling her about my crazy…
Ugh my toe hurts. That strange MS symptom that comes once in a while for no reason. It just started hurting in the middle of the night. Same thing always right foot, big toe. Didn’t hurt when I put a shoe on but it is now a dull throbbing with my shoe off and feet elevated, just like when I’m in bed. It actually feels better when I bend it. So annoying. Such a strange symptom too. Just nerves misfiring…
