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Tag: MS

The morning stillness

The morning stillness

There isn’t a wind blowing outside which makes the water completely still. This is one of my favorite views. I could easily capture this in a photo because the water isn’t moving in a picture. Now imagine that in person, just complete stillness. There isn’t a boat, a ripple or a current disturbing the top of the water. I have a thing for the quietness of mornings like this. When my dogs aren’t barking, no one is in my house…

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The Obesity Code

The Obesity Code

After my upsetting week last week following weight watchers I choose to see my weight differently. I asked the universe for help. I immediately got to my life coach but then I got an email from my cousin. It was actually her second email regarding a book called <br /> . My cousin’s first email was explaining about the book before she knew I was struggling. The second email was following my blog post where she was more insistent that…

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Backdoor chute suggestion worked

Backdoor chute suggestion worked

There are some days when I blog and I really have nothing to say and then there are some days, like last week, where I put up an embarrassing blog about my constipation issues with MS When the back door garbage chute isn’t working that I get a comment with a suggestion. Gary uses Nature’s Plus Oats n Honey Chewable wafers . What did I have to loose the chute wasnt working right. I placed an order for them. They…

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When the back door garbage chute isn’t working

When the back door garbage chute isn’t working

I’ve been having such problems again going to the bathroom. This is an issue I’ve struggled with for years but continues to to get worse. Every time I think I found something that works it eventually stops working. My main problem is twofold. I can’t push and I can’t hold. Meaning I can’t get it out and if it’s coming out I can’t hold it in and I’m going to have an accident. Sorry to be so graphic but is…

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My first van oops

My first van oops

So I was at my hairdresser yesterday, an appointment I never miss. I was alone with my van and wasn’t the least bit concerned. I knew I needed my walker not my scooter to go in so my aid and I had that in my car before I went. I was even prepared and got my other walker out of storage so I didn’t have to worry about bringing it back into my condo. I meet my mom at the…

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Exhaustion and fatigue setting in

Exhaustion and fatigue setting in

I could have spent the day in bed. That’s the one thing two dogs and a nursing aid that comes early in the morning prevents. Not that my aid would mind or wouldn’t help me but my dogs would drive me crazy running between her and me. I can’t shake the exhaustion in the morning and the fatigue in the evening yet. I actually think this started from my rituxan infusion back in mid March, I believe I said I…

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Weather change changes MS symptom

Weather change changes MS symptom

As the weather starts to get warmer I start to get more sluggish. It’s beautiful outside and I’m ready for a nap. Yesterday the temperature hit over 60 degrees for the first time, a gorgeous weather day but after physical therapy I was thrilled to be home. I was exhausted. Physical therapy was difficult. My therapist, knowing I hate this answer, said it’s weather changes as always the body has to adjust. Our symptoms get worse than hopefully level off…

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Smoking

Smoking

Do you smoke? I did for a long time and quit a few times. I was a funny smoker. I could smoke a pack a day and then go the next day not smoking one and be fine. Other than my first apartment I didn’t allow smoking in my house even though I was a smoker. I didn’t want all my stuff to stink. It’s tough to smoke outside in the dead of winter. I quit once on my grandmother’s…

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Accepting multiple sclerosis

Accepting multiple sclerosis

It used to take me a long time to accept each stage of MS. Each relapse and each steroid treatment it would take time for my head to get on straight to get better. People use to tell me I was so brave but the truth is, I wasn’t, I was in denial. I tried to pretend it wasn’t happening to the outside world. To my immediate family, especially my mom, I cried and complained often. They heard it all….

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I’m getting a new wheelchair

I’m getting a new wheelchair

Another good day with good news for me. My insurance is covering for a new Hooveround MPV5. I bought my original one used a few years ago and I loved it but it always had issues. First of all it doesn’t drive straight. The chair’s steering was always messed up and to get it to go straight meant I had to steer slightly to the right. Sometimes if I went to fast I zigzagged and ran over peoples feet. The…

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