I’ve been having such problems again going to the bathroom. This is an issue I’ve struggled with for years but continues to to get worse. Every time I think I found something that works it eventually stops working. My main problem is twofold. I can’t push and I can’t hold. Meaning I can’t get it out and if it’s coming out I can’t hold it in and I’m going to have an accident. Sorry to be so graphic but is…
So I was at my hairdresser yesterday, an appointment I never miss. I was alone with my van and wasn’t the least bit concerned. I knew I needed my walker not my scooter to go in so my aid and I had that in my car before I went. I was even prepared and got my other walker out of storage so I didn’t have to worry about bringing it back into my condo. I meet my mom at the…
I could have spent the day in bed. That’s the one thing two dogs and a nursing aid that comes early in the morning prevents. Not that my aid would mind or wouldn’t help me but my dogs would drive me crazy running between her and me. I can’t shake the exhaustion in the morning and the fatigue in the evening yet. I actually think this started from my rituxan infusion back in mid March, I believe I said I…
As the weather starts to get warmer I start to get more sluggish. It’s beautiful outside and I’m ready for a nap. Yesterday the temperature hit over 60 degrees for the first time, a gorgeous weather day but after physical therapy I was thrilled to be home. I was exhausted. Physical therapy was difficult. My therapist, knowing I hate this answer, said it’s weather changes as always the body has to adjust. Our symptoms get worse than hopefully level off…
Do you smoke? I did for a long time and quit a few times. I was a funny smoker. I could smoke a pack a day and then go the next day not smoking one and be fine. Other than my first apartment I didn’t allow smoking in my house even though I was a smoker. I didn’t want all my stuff to stink. It’s tough to smoke outside in the dead of winter. I quit once on my grandmother’s…
It used to take me a long time to accept each stage of MS. Each relapse and each steroid treatment it would take time for my head to get on straight to get better. People use to tell me I was so brave but the truth is, I wasn’t, I was in denial. I tried to pretend it wasn’t happening to the outside world. To my immediate family, especially my mom, I cried and complained often. They heard it all….
Another good day with good news for me. My insurance is covering for a new Hooveround MPV5. I bought my original one used a few years ago and I loved it but it always had issues. First of all it doesn’t drive straight. The chair’s steering was always messed up and to get it to go straight meant I had to steer slightly to the right. Sometimes if I went to fast I zigzagged and ran over peoples feet. The…
I went in my pool yesterday for the first time in almost 4 months. It’s the first time I even swam since the middle of January when I was away. My elevator was broken for so long and it is my elevator that is attached to the building with the pool. For me in my wheelchair, I have to go outside to get to the pool when my elevator is broken because otherwise there are steps. Other people wouldn’t have…
I was perfect this week. I tracked my food each day. I was within my point range. I didn’t consume my weekly points. I worked out to the best of my ability 5 days this week. I stayed off the scale so I didn’t let it dictate how I ate. I was excited to weight in at the end of the week. My result…I gained 1.2 pounds. I kid you not. At first I was like WTF but realized this…
I’ve been plagued with these migraines for years and years. I remember when they first started. I was driving home from a meeting and was in heavy traffic. I started to notice my right eye blocking out part of the license plate in front of me. Thankfully I was in traffic because I started freaking out. I didn’t know anything about auras at the time but I knew optic neuritis. I thought I was having the start of an MS…
