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Tag: MS

Anxiety and Multiple Sclerosis

Anxiety and Multiple Sclerosis

I am happy to be home. I slept a lot over the weekend. I was so tired, still am. This morning will be my first day back in the pool. I was happy to be back. Was able to do my 25 laps. I like routine and I’ve noticed that I get anxiety when I’m out of routine. I get major anxiety packing to go away which completely affects all my MS symptoms. Every time I go away somewhere, no…

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Proud to be with the spirit junkies

Proud to be with the spirit junkies

Well I can certainly say today’s content is much lighter than yesterday’s. We are discussing marketing and the online presence. Hey, I got that. I write a blog. It’s all about website and blog related information. Right up my alley, no tears. Yet I walked out of the meeting pretty cranky. The room we used was so hot. Every time a window was opened, some one closed it minutes later. Here I am in a very light shirt overheating. Overheating…

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I hate MS too!!!

I hate MS too!!!

People write in their journals all during this event, I blog. Partially because my penmanship isn’t so good anymore and my hand tires out and because this is where I work out my sh@t. Today was fine until the last ten minutes before lunch. We did a soul retrieval meditation where you find your inner child and hold them close, becoming their protector. Keeping them safe, loved and cared for. Bringing your inner child back into your heart. This is…

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Day one of my retreat

Day one of my retreat

Not a bad view to wake up to this morning. I was exhausted. Slept without a bathroom break, that is a very rare. I didn’t move all night long. I needed that. It was three days that I didn’t sleep well. I was starting to get cranky. Today I lead my very first group meditation. I’ve been around meditation since I was 10 but I never guided a group. I could critique myself but I why would I. Of course…

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An unexpected surprise at breakfast

An unexpected surprise at breakfast

A 45 minute trip from Saugerties to eat breakfast at the greatest pancake place ever. I did come off Keto for the morning and it was worth it. I had the greatest chocolate chip pancakes. The place was packed. We haven’t gone there in over 3 years because my sister hates the wait, trip and calories. To me, it was worth it. However the most amazing part of this whole thing was when I walked in sitting down was my…

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Happy Sunday

Happy Sunday

The minions in Saugerties. I loved this. It was out front of someone’s home but I made my step dad stop so I could get a picture. I love minions, how cute is this? We also went by the park and they had the most incredible mums. This was only a part but it was just so pretty. I love this life up here. So different then the suburbs of Long Island 3 hours away. I’m going to my retreat…

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I’m getting tired of fighting

I’m getting tired of fighting

What started out as a good day ended pretty horrible. Getting the last few items together for me trip, I ended up severely exhausted. I don’t even know if exhausted is the right word. I had to get something in my daughter’s closet for her and it required me to go to the floor. I really knew this was bad because I was so tired, I just didn’t realize how bad. I couldn’t get up. I didn’t even have the…

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A good nights sleep

A good nights sleep

When was the last time you had one of those? I went into bed my usual time, around 9:30. I usually watch tv a little before closing my eyes. I feel asleep and slept until 3:30 before I had to use the bathroom. That is a record for me. A long stretch. I feel back asleep and woke up at 7:30 and I was awake and refreshed not groggy and still sleepy as I have been for many mornings now….

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Mahjong fun with friends and good for the brain

Mahjong fun with friends and good for the brain

What fun yesterday was. My MS friends and I joined a beginners class to learn mahjong. I must admit I did have a lesson before with my mom and my girlfriends which was a lot of fun but it was difficult organizing everyone to get together again. I’ve been wanting to learn mahjong for a long time. I originally brought the idea up to my MS girls because we are around during the day and I thought it would be…

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An early birthday present

An early birthday present

I bought myself a gift, another Fitbit. This one is the flex2 which can track swimming. One can argue the fact that tracking steps and activity for someone who has multiple sclerosis is kind of pointless, and it may be true but I wanted to see. I am curious on a few points: sleeping, activity and steps. I used to always track how well I slept through my Fitbit. It shows how much you were restless and how much you…

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