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Tag: Multiple sclerosis

Multiple Sclerosis Glossary of terms

Multiple Sclerosis Glossary of terms

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This is a lot of copy and paste of words we hear as patients with multiple sclerosis. I got this off of  ms lifelines seen here http://www.mslifelines.com/ms-terms  I wanted to create a quick reference place for some of those terms we hear not only for me, because I forget, but for anyone else who needs it. This is a selected list off of http://www.mslifelines.com/ms-terms ms lifelines. Ataxia Lack of coordination and unsteadiness that result from the brain’s failure to regulate the body’s posture and…

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Up all night and it wasn’t a party

Up all night and it wasn’t a party

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ALL NIGHT!!! I may have slept for twenty minutes at the most. I know at some point my dogs started playing with each other like it was the afternoon. One of them was sick, I was cleaning up my floor at wee hours of the morning. I was crying because when I’m that tired and can’t sleep I get very frustrated and cranky.  I can’t take not sleeping. It’s just the worst thing that could happen t me. It’s this…

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Rewriting a story I believed for most of my life

Rewriting a story I believed for most of my life

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When I was 16 or 17 years old I went to a psychic, the only thing I remember, and unfortunately I’ve always lived by, she told me I won’t have a lot of friends but the few that I would have will be true friends. I remember thinking  that’s good I’ll have true friends for the rest of my life. At 16 and 17 when girls were still backstabbing each other I thought that was a pretty good thing. As…

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Perseverance, persistent or just plain stubborn

Perseverance, persistent or just plain stubborn

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I don’t know which one I am take your pick. If you haven’t read my post for the last couple of days, I had an incident. I slid to the floor and I wasn’t able to get up.  One of the culprits could’ve been the fact that I increased one of my medicines, Gabapentin which is the generic form of Neurontin, due to the pain in my shoulder from tendonitis. I increased it on Sunday, and the incident happened on…

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Yesterday was a very disheartening MS day explanation

Yesterday was a very disheartening MS day explanation

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First I want to thank everybody. I had a lot of support from a lot of people and I can’t say how much it meant to me.   There were a few contributing factors that went into yesterday that I wanted to explain. First was my mood. I was very stressed over an email I got the night before about my daughters housing for college. Her housing agreement had to be signed and returned to the school within five days…

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The myth we only use 10% of the brain

The myth we only use 10% of the brain

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I’m sure you’ve heard somewhere reading, commercials or seeing it on the Internet, the power of the brain. When I started my spiritual journey, the talk about the brain, and the power of it, made me wonder if somehow my thinking made me sick? Did I give myself multiple sclerosis? The brain is said to have such capacity and we only use 10% of it. I  honestly could say I’ve always believed that theory. It is said that 65% of Americans…

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Dizzy when I stand up….

Dizzy when I stand up….

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Have you ever stood up and got dizzy? “Dizziness or light-headedness when standing up occurs as a result of abnormal blood pressure regulation. Normally, when people stand, gravity causes blood to pool in the veins of the legs and trunk. This pooling lowers the blood pressure and the amount of blood the heart pumps to the brain.” Unfortunately this happens to me more often then I’d like to admit. I remember 3 specific scary stories that were really severe, although…

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Ocrelizumab (Ocrevus) information

Ocrelizumab (Ocrevus) information

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I wanted to write another post about Ocrelizumab (Ocrevus) the new drug approved recently by the FDA for relapsing remitting multiple sclerosis and primary progressive multiple sclerosis. I am hoping I can simplify the drug information for people here.  I’m not going to go explain what relapse remitting multiple sclerosis is or primary multiple sclerosis is because I’m assuming if you’re looking for information about this drug, you either have it or someone you know has it. If you’re looking…

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I am never getting a handicap van

I am never getting a handicap van

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So I had to take my mom and my stepdad to the airport yesterday. We were driving my black Honda Civic two door. His name is Bob. I name all my cars.  Everybody was trying to tell me you should not get a two door car, you have too many devices that need to go in the car for your MS. They were all right. I really should not of gotten a two door car. However he’s so beautiful and sexy,…

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Online dating and multiple sclerosis

Online dating and multiple sclerosis

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It’s official, my match.com membership ends on May 17. I haven’t been really active on match since November.  The last guy dated started off really good, it was my nine-hour date, the blog about it here https://multipleexperiences.org/2016/10/03/my-9-hour-best-first-date/.  He was a nice guy, but it wasn’t for me.   I put up many blogs about how I don’t want to date. I’m scared to date for a few reasons. It’s a funny feeling because I don’t want to be alone but I don’t want to…

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